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Primary Tumor Research and Outcomes Network

Key facts

Where
Kanazawa, JapanSee the site

Where in Japan

  • Kanazawa Medical University HospitalKanazawa, JapanNo longer taking part

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
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Trial details

Who runs it
AO Innovation Translation Center
Trial code
NCT02790983
Record updated
25 February 2026
Original description
This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.Read full original descriptionShow less

Primary Tumor Research and Outcomes Network (PTRON) A Multicenter Prospective Registry for the Management and Outcomes of Primary Tumors of the Spine

This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.

Inclusion: Patient with a current primary spine tumor or history of a primary spine tumor, including tumors within or surrounding the spinal column and/or spinal cord. This includes extradural tumors, intramedullary tumors (i.e. astrocytomas, ependymoma, etc.) and extramedullary tumors (i.e. meningiomas, neurofibromas, schwannomas, etc.); Informed consent obtained, i.e.:; Ability to understand the content of the patient information/ICF; Willingness and ability to participate in the registry according to the Registry Plan (RP); Signed and dated EC/IRB approved written informed consent; OR; Written consent provided according to the IRB/EC defined and approved procedures for patients who are not able to provide independent written informed consent.

Exclusion: Patient diagnosed with a metastatic tumor of the spine.

ClinicalTrials.gov NCT02790983