Records long-term outcomes of people with endometriosis and pelvic pain
Collects long-term data from people with endometriosis and pelvic pain seen at a clinic.
Plain-language title generated from the registry record
Registry title: Endometriosis Pelvic Pain Interdisciplinary Cohort Data Registry
Key facts
- Where
- Vancouver, CanadaSee the site
Where in Canada
- BC Women's Hospital & Health CentreVancouver, CanadaNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- BC Women's Hospital & Health Centre
- Trial code
- NCT02911090
- Record updated
- 7 August 2024
- Original description
The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.Read full original descriptionShow less
Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry
The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.
Inclusion: All new and re-referred patients at the BC Women's Centre for Pelvic Pain and Endometriosis.
Exclusion: Patients at the BC Women's Centre for Pelvic Pain and Endometriosis seen for reasons other than chronic pelvic pain and/ or endometriosis as well as patients who decline to complete the online questionnaire.