Research contact registry for Amish and Mennonite community members
Registers Amish and Mennonite people interested in joining future medical studies.
Key facts
- Who runs it
- University of Pittsburgh
- Where
- Pittsburgh, United StatesSee the site
- Trial code
- Registry title
- Amish/Mennonite Research Contact Registry
- Status
- Recruiting
- People taking part
- 1,000 people, planned
- Started
- Oct 2016
- Expected to end
- Dec 2030
- Type of study
- Observational
- Record updated
- 29 January 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for Amish and Mennonite adults and children who want to be contacted about future medical research studies.
- Age
- Adults age 18 or older. Children can join with a parent's permission.
- Sex
- Men and women can join.
Main reasons for not taking part
- Adults age 18 or older who do not speak English
- People who are not Amish or Mennonite
The registry criteria, word for word
Show all 4 criteriaShow less
Who can take part
- Amish and Mennonite men and women age 18 or older
- Amish and Mennonite children with the permission of a parent
Who cannot take part
- Amish and Mennonite men and woman age 18 or older who do not speak English
- Those who are not Amish or Mennonite
Where in United States
- Children's Hospital of PittsburghPittsburgh, United StatesContact: Jerome Doerger, BFA, MS, MPH, LCGCTaking people
About the trial
What the trial wants to find out
The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.
The group in the trial
- Amish and Mennonite
* Agree to allow access to past, current, and future medical records * Provide a detailed family health history * Provide contact information that may be used for future approach regarding research studies
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Research Contact Registry for Members of the Amish and Mennonite Communities
- Plain-language title
- Research contact registry for Amish and Mennonite community membersGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 29 January 2026