Long-term health study of Swiss people who had childhood cancer
Studies long-term health and quality of life in people treated for childhood cancer.
Plain-language title generated from the registry record
Registry title: Swiss Childhood Cancer Survivor Study
Key facts
- Where
- Bern, SwitzerlandSee the site
Where in Switzerland
- Institute of Social and Preventive Medicine (ISPM), University of BernBern, SwitzerlandTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Bern
- Trial code
- NCT03297034
- Record updated
- 29 June 2026
- Original description
The SCCSS is designed to investigate which long-term effects childhood cancer and its treatment have on survivors, and includes those who were under 20 years when they were diagnosed. The SCCSS explores childhood cancer survivors' quality of life, the health care received by childhood cancer survivors during follow-up care, the effects of medication, somatic and psychosocial health issues, how childhood cancer survivors take care of their own health including health behaviors, and also collects demographic details like family background, education and profession. To learn more about these topics, the investigators send questionnaires to childhood or adolescent cancer survivors. The investigators use the results to inform physicians and patients, and to improve treatment of childhood cancer and follow-up.Read full original descriptionShow less
Swiss Childhood Cancer Survivor Study (SCCSS)
The SCCSS is designed to investigate which long-term effects childhood cancer and its treatment have on survivors, and includes those who were under 20 years when they were diagnosed. The SCCSS explores childhood cancer survivors' quality of life, the health care received by childhood cancer survivors during follow-up care, the effects of medication, somatic and psychosocial health issues, how childhood cancer survivors take care of their own health including health behaviors, and also collects demographic details like family background, education and profession. To learn more about these topics, the investigators send questionnaires to childhood or adolescent cancer survivors. The investigators use the results to inform physicians and patients, and to improve treatment of childhood cancer and follow-up.
Inclusion: Who were diagnosed with cancer at age <20 years; Who have survived at least 5 years after cancer diagnosis; Who were Swiss residents when they were diagnosed, and; Who gave informed consent.