NCT03489278Recruiting
Clinical Procedures to Support Research in ALS
Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
Source: ClinicalTrials.gov · Last updated 15 Jun 2026
Brief summary (registry, in English)
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 1200 (estimated)
- First submitted
- 23 Mar 2018
- Start date
- 15 Feb 2018
- Primary completion date
- 30 Jun 2032
- Lead sponsor
- University of Miami
- NCT number
- NCT03489278
What you commit to
- Study type: Observational
- Planned participants: 1200
- From 15 Feb 2018 to the primary completion date, 30 Jun 2032
- 11 sites in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Inability to understand English and/or Spanish
Who the study is looking for
- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
- Receiving care at a clinical center that uses Epic as its EHR.
- Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (11)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Duke University Coordinator of this site? Confirm its status | Durham | United States | Recruiting |
| University of California, Irvine Coordinator of this site? Confirm its status | Irvine | United States | Recruiting |
| University of Kansas Medical Center Coordinator of this site? Confirm its status | Kansas City | United States | Recruiting |
| University of Miami Coordinator of this site? Confirm its status | Miami | United States | Recruiting |
| Hennepin County Medical Center Coordinator of this site? Confirm its status | Minneapolis | United States | Recruiting |
| Columbia University Coordinator of this site? Confirm its status | New York | United States | Active, not recruiting |
| Stanford University Coordinator of this site? Confirm its status | Palo Alto | United States | Recruiting |
| Providence Health & Services Coordinator of this site? Confirm its status | Portland | United States | Recruiting |
| University of Texas - San Antonio - Health Science Center Coordinator of this site? Confirm its status | San Antonio | United States | Recruiting |
| California Pacific Medical Center Coordinator of this site? Confirm its status | San Francisco | United States | Recruiting |
| Wake Forest University Coordinator of this site? Confirm its status | Winston-Salem | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.