Follows people with amyotrophic lateral sclerosis to study disease course and risk factors
Observes Chinese patients with ALS to study disease course, risk factors, and genetics.
Plain-language title generated from the registry record
Registry title: A Registered Cohort Study on Amyotrophic Lateral Sclerosis
Key facts
- Where
- Fuzhou, ChinaSee the site
Where in China
- Department of Neurology, First Affiliated Hospital of Fujian Medical UniversityFuzhou, ChinaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- First Affiliated Hospital of Fujian Medical University
- Trial code
- NCT04008329
- Record updated
- 22 March 2021
- Original description
Amyotrophic lateral sclerosis (ALS) is a kind of motor neuron degeneration disorder without effective therapy. This registered cohort study will provide further insights into the clinical course of ALS, and investigate disease-relative risk factors and the genetic background of Chinese ALS patients.Read full original descriptionShow less
A Registered Cohort Study on Amyotrophic Lateral Sclerosis
Amyotrophic lateral sclerosis (ALS) is a kind of motor neuron degeneration disorder without effective therapy. This registered cohort study will provide further insights into the clinical course of ALS, and investigate disease-relative risk factors and the genetic background of Chinese ALS patients.
Inclusion: Amyotrophic Lateral Sclerosis patients fulfilling the El Escorial criteria (including definite, probable and possible); Progressive muscular atrophy; Primary lateral sclerosis; Progressive bulbar palsy.
Exclusion: History of serious head trauma or neuropsychiatric disease; Decline to participate.