Registry collecting data on German patients with sarcoma and carcinosarcoma
Collects health information from adults in Germany who have sarcoma or carcinosarcoma.
Plain-language title generated from the registry record
Registry title: GISAR German Interdisciplinary Sarcoma Registry
Key facts
- Where
- Bad Saarow, Berlin, Berlin-Spandau, Erlangen, Frankfurt, Freiburg im Breisgau, Göttingen, Greifswald, Halle, Hamburg, Leipzig, Mainz, Mannheim, Münster, Nuremberg, Regensburg, Tübingen, and Würzburg, GermanySee the 20 sites
Where in Germany
- HELIOS Klinikum Bad SaarowBad Saarow, GermanyTaking people
- Helios Klinikum Berlin BuchBerlin, GermanyTaking people
- Vivantes Klinikum Berlin-SpandauBerlin-Spandau, GermanyTaking people
- Universitätsklinikum ErlangenErlangen, GermanyTaking people
- Klinikum Frankfurt HöchstFrankfurt, GermanyTaking people
- Krankenhaus Nordwest (KHNW)Frankfurt, GermanyTaking people
- Uniklinik FreiburgFreiburg im Breisgau, GermanyTaking people
- Universitätsmedizin GöttingenGöttingen, GermanyTaking people
- Universitätsmedizin GreifswaldGreifswald, GermanyTaking people
- University Hospital Halle/SaaleHalle, GermanyTaking people
- Asklepios Klinik St. GeorgHamburg, GermanyTaking people
- Uniklinikum LeipzigLeipzig, GermanyTaking people
- Universitätsmedizin MainzMainz, GermanyTaking people
- Chirurgische Universitätsklinik MannheimMannheim, GermanyTaking people
- Westfälische Wilhelms-Universität MünsterMünster, GermanyTaking people
- Klinikum NürnbergNuremberg, GermanyTaking people
- Barmherzige Brüder RegensburgRegensburg, GermanyTaking people
- Uniklinikum RegensburgRegensburg, GermanyTaking people
- Universitätsklinikum TübingenTübingen, GermanyTaking people
- Universitätsklinikum WürzburgWürzburg, GermanyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Institut für Klinische Krebsforschung IKF GmbH at Krankenhaus Nordwest
- Trial code
- NCT04122872
- Record updated
- 5 February 2026
- Original description
GISAR has an open and modular setup. It is sought to include as many German sarcoma and CS patients (i.e. sarcoma and CS patients treated in Germany) in the registry as possible. A basic data set should be collected on every included patient). In order to adress specific scientific questions, additionally detailed data can be collected in defined patient groups (e.g. effectiveness / adverse effects of systemic therapies in defined situations) within the context of sub-project add-on modules. This data collection can be prospective or retrospective depending on the sub-projectRead full original descriptionShow less
GISAR German Interdisciplinary Sarcoma Registry
GISAR has an open and modular setup. It is sought to include as many German sarcoma and CS patients (i.e. sarcoma and CS patients treated in Germany) in the registry as possible. A basic data set should be collected on every included patient). In order to adress specific scientific questions, additionally detailed data can be collected in defined patient groups (e.g. effectiveness / adverse effects of systemic therapies in defined situations) within the context of sub-project add-on modules. This data collection can be prospective or retrospective depending on the sub-project
Inclusion: Histological verified bone or soft tissue sarcomas including bone and soft tissue tumors with borderline histological results or with unclear histological dignity like giant cell tumors of the bone (GCTB), desmoid tumors, atypical lipomatous tumors etc. - independent of therapy form and therapy line - or Histological verified sarcomatoid carcinomas/ carcinosarcomas: tumors with histological, cytological, or molecular properties of both epithelial tumors ("carcinoma") and mesenchymal tumors ("sarcoma") - independent of therapy form and therapy line; Signed informed consent form or equivalent (s. chapter 10); Age ≥18 years.
Exclusion: none.