NCT04394767Terminated
Couple and Spouse Caregiver in Huntington's Disease
Source: ClinicalTrials.gov · Last updated 16 May 2025
Reason given: Sponsor's decision, no more inclusions made since the last extension
Brief summary (registry, in English)
The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.
- Status (registry)
- Terminated
- Study type
- Observational
- Enrollment
- 48 (actual)
- First submitted
- 16 Oct 2019
- Start date
- 13 Jan 2020
- Primary completion date
- 12 Jan 2024
- Lead sponsor
- University Hospital, Lille
- Diseases
- Huntington's disease
- NCT number
- NCT04394767
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Other chronic neurologic disorder
- For both spouses :
- Psychiatric disease
Other
- For patient :
- Unable to participate, incl read, understand and sign the informed consent
Who the study is looking for
- For patient :
- HD, CAG > 36, motor UHDRS > 5
- Being able to communicate with the investigator
- For both spouses :
- Living together since at least 5 years
- 30 to 60 years old
Age in the registry: 30 years to 70 years · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Save your city in your profile to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Hopital Roger Salengro, CHU Lille | Lille | France | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.