Registry and biobank collecting data on rheumatic diseases in adults
Collects health information and samples from adults with rheumatic diseases for research.
Plain-language title generated from the registry record
Registry title: Rheumatology Patient Registry and Biorepository
Key facts
- Where
- New Haven, United StatesSee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 99 years old?
Source: NCT04402086, who can take part
Where in United States
- Yale New Haven HospitalNew Haven, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Yale University
- Trial code
- NCT04402086
- Record updated
- 13 February 2026
- Original description
To facilitate clinical, basic science, and translational research projects involving the study of rheumatic diseases.Read full original descriptionShow less
Rheumatology Patient Registry and Biorepository
To facilitate clinical, basic science, and translational research projects involving the study of rheumatic diseases.
Inclusion: Patients ≥18 years old with a diagnosis of a rheumatic autoimmune disease including, but not limited to: adult onset Still's disease, ankylosing spondylitis, antiphospholipid syndrome, Behcet's disease, dermatomyositis, giant cell arteritis, mixed connective tissue disease, polymyalgia rheumatica, polymyositis, psoriatic arthritis, reactive arthritis, rheumatoid arthritis, sarcoidosis, scleroderma, Sjogren's syndrome, systemic lupus erythematosus, undifferentiated connective tissue disease and vasculitis; Receiving clinical care at Yale Rheumatology clinics; Age ≥ 18 years old; No chronic skin conditions; No diagnosis of a rheumatic autoimmune disease (e.g., lupus, rheumatoid arthritis); Normal BMI.
Exclusion: Patients allergic to lidocaine or epinephrine or have a history of impaired wound healing will not be able to donate a skin biopsy; Allergies to lidocaine or epinephrine (skin biopsies); A history of impaired wound healing (skin biopsies); Unable to provide informed consent; No patients will be excluded based on gender or ethnicity or pregnancy status; Women who are currently pregnant will need to wait to donate a skin biopsy until after they deliver; Unable to provide informed consent; Currently pregnant or nursing unless the study goal is to study pregnant or nursing woman.