Follows adults with idiopathic pulmonary fibrosis during a flare-up needing hospital care
Follows adults with pulmonary fibrosis who have a breathing flare-up.
Plain-language title generated from the registry record
Registry title: Cohort of IPF Patients Experiencing an Exacerbation
Key facts
- Where
- Hellerup, DenmarkSee the site
Where in Denmark
- Herlev and Gentofte HospitalHellerup, DenmarkTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University Hospital, Gentofte, Copenhagen
- Trial code
- NCT04442711
- Record updated
- 22 December 2023
- Original description
Extension of the PFBIO cohort which includes patients with newly diagnosed idiopathic pulmonary fibrosis (IPF) for longitudinal follow-up for up to 5 years.Read full original descriptionShow less
Pulmonary Fibrosis Biomarkers During Exacerbation
Extension of the PFBIO cohort which includes patients with newly diagnosed idiopathic pulmonary fibrosis (IPF) for longitudinal follow-up for up to 5 years.
In the PFBIO-EXA extension, patients are included if they experience an exacerbation, or other increase in respiratory symptoms requiring hospital admission, for further collection of clinical and biological data.
Inclusion: Admitted with an increase in respiratory symptoms; Already included in PFBIO or included simultaneously in PFBIO and PFBIO-EXA; Age at least 18 years.
Exclusion: Unable to provide informed consent.