NCT04612296Recruiting
The Heart Hive - Cardiomyopathy Study
A Longitudinal Observational Study of Self-reported Cardiomyopathy in the Heart Hive
Source: ClinicalTrials.gov · Last updated 27 Mar 2026
Brief summary (registry, in English)
This is an online registry and database of patients with cardiomyopathy and myocarditis, coupled with an observational study of cardiomyopathies.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 10000 (estimated)
- First submitted
- 1 Sept 2020
- Start date
- 9 Nov 2019
- Primary completion date
- 1 Oct 2026
- Lead sponsor
- Imperial College London
- Diseases
- Hypertrophic cardiomyopathy
- NCT number
- NCT04612296
What you commit to
- Study type: Observational
- Planned participants: 10000
- From 9 Nov 2019 to the primary completion date, 1 Oct 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- who have undergone previous percutaneous coronary intervention or coronary bypass surgery
Other illness
- Patients with a confirmed history of coronary artery disease:
- who have been informed by their treating physician that their cardiomyopathy is secondary to their coronary artery disease, or
- History of primary valvular heart disease or congenital heart disease
- Severe, untreated or untreatable hypertension (systolic blood pressures routinely \>180 mm Hg and/or diastolic blood pressures \>120 mm Hg)
Other
- Patients who lack capacity to consent for themselves,
- Vulnerable groups (e.g. those under 18, prisoners, those in a dependent relationship, the mentally ill).
Who the study is looking for
- Adult (age 18 and over),
- Males and Females,
- Capacity to provide informed consent,
- Patients with a confirmed diagnosis of cardiomyopathy or myocarditis,
- People with a family history of cardiomyopathy confirmed in a first or second degree relative.
- Note: Pregnant women are eligible. This study is observational and entirely separate from clinical care.
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Imperial College London Coordinator of this site? Confirm its status | London | United Kingdom | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.