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Hypertrophic cardiomyopathy

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Cure status

Closest to patients

  1. BHB-1893 Versus Metoprolol for Symptomatic Obstructive Hypertrophic CardiomyopathyPhase 3 trial: BHB-1893, MetoprololBraveheart Bio, Inc. (sponsor) · 3 hospitals in United StatesPhase 3Results expected 2028
  2. Open-label Extension Study to Evaluate the Long-term Safety and Tolerability of Aficamten in Adults With HCMPhase 2/3 trial: Aficamten (5 - 20 mg)Azienda Ospedaliera Universitaria Federico II Di Napoli · Naples, Italy + 142 more hospitalsPhase 2/3Results expected 2029
  3. LA-HCM Study : Rivaroxaban for Antithrombotic Prevention in Hypertrophic Cardiomyopathy Patients With Abnormal Left Atrial Strain.Phase 3 trial: Anticoagulant treatment RivaroxabanCHU de Tours - Hopital Trousseau · Tours, France + 16 more hospitalsPhase 3Results expected 2032

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If you are looking for a relative

Here you will find questions you can ask, help with difficult talks, organisations for carers and your relative's rights.

Questions for your relative's doctor

How do I talk to them about this?

You do not need the right words. Ask what your relative wants to know, and let them set the pace. These pages can help.

Support for you as a carer

Looking after someone is work too. These organisations help carers, and the list further down this page shows helplines by country.

Organisations on this page

Power of attorney and patient rights, by country

A doctor can share information and a relative can act only with the patient's consent or a legal authority. It is easier to arrange this early.

If you are looking for your child

Children are often treated differently from adults, in specialist centres. Here is where to start.

Before you pay

Parents often receive offers of paid treatment. Please go through this list before you pay for anything.

Open the before-you-pay list

For patient organisations

You can share or print these pages for your members. They are free and need no account.

Apply for experimental treatment or a research study

The trial team decides who can take part; your doctor can help you ask.

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Latest news

Results, new trials and publications, newest first. Every item links to its source.

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Tools for your next step

Questions for your doctor

Pick up to 5 questions for your situation, then print them or take them on your phone.

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Used an AI to ask about this?

Five questions that help you check the answer.

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Organisations that can help

Helplines, patient groups and support services for you and your family.

Select your country to see the organisations there, starting with the ones closest to you.

Umbrella organisations (they connect national groups)

  • Global Heart Hub

    Global umbrella of heart patient organisations; runs a Heart Failure Patient Network, awareness campaigns, advocacy and patient resources.

    International

    Visit site: Global Heart Hub

  • Hypertrophic Cardiomyopathy Association International

    International division of the US HCM Association: translated HCM information, country-specific resources, help finding expert care, and partnerships with HCM groups in other countries.

    International

    Visit site: Hypertrophic Cardiomyopathy Association International

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

Frontlight is not affiliated with these organisations; we list them because they help.

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Find fellow researchers

Groups with active Hypertrophic cardiomyopathy work.

Mayo Clinic

Rochester, United States

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Harvard University

Cambridge, United States

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University of Pennsylvania

Philadelphia, United States

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Brigham and Women's Hospital

Boston, United States

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University College London

London, United Kingdom

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Chinese Academy of Medical Sciences & Peking Union Medical College

Beijing, China

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Lahey Hospital and Medical Center

Burlington, United States

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Cleveland Clinic

Cleveland, United States

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Cytokinetics (United States)

South San Francisco, United States

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Stanford University

Stanford, United States

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Meyer Children's Hospital

Florence, Italy

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