Registry collecting health information on desmoplastic small round cell tumor
Collects health information from people with desmoplastic small round cell tumor to learn more.
Key facts
- Who runs it
- Memorial Sloan Kettering Cancer Center
- Where
- New York, United StatesSee the site
- Trial code
- Registry title
- Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
- Status
- Recruiting
- People taking part
- 250 people, planned
- Started
- 22 Dec 2020
- Expected to end
- Dec 2027
- Type of study
- Observational
- Record updated
- 12 January 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for people with desmoplastic small round cell tumor (DSRCT). They share health information for a registry that helps research on this tumor.
- Age
- Any age, as long as the right consent and assent can be obtained.
- Sex
- All sexes can join.
- Disease stage
- A diagnosis of desmoplastic small round cell tumor.
Main reasons for not taking part
- People who are unwilling to give consent
- People who are unwilling to share past and ongoing clinical data
The registry criteria, word for word
Show all 4 criteriaShow less
Who can take part
- Participants must have a diagnosis of desmoplastic small round cell tumor
- Participants may be of any age as long as the appropriate consent and assent may be obtained
- Willing to provide historical and longitudinal clinical data
Who cannot take part
- Participant unwilling to provide consent or share historical and longitudinal clinical data
Where in United States
- Memorial Sloan Kettering Cancer Center (All Protocol Activities)New York, United StatesContact: Emily Slotkin, MDTaking people
About the trial
What the trial wants to find out
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.
Read full original descriptionShow less
The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
The group in the trial
- Desmoplastic small round cell tumor (DSRCT)
Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Registry for Patients With Desmoplastic Small Round Cell Tumor
- Plain-language title
- Registry collecting health information on desmoplastic small round cell tumorGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 12 January 2026