Registry collecting health information on desmoplastic small round cell tumor
Collects health information from people with desmoplastic small round cell tumor to learn more.
Plain-language title generated from the registry record
Registry title: Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
Key facts
- Where
- New York, United StatesSee the site
Where in United States
- Memorial Sloan Kettering Cancer Center (All Protocol Activities)New York, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Memorial Sloan Kettering Cancer Center
- Trial code
- NCT04690374
- Record updated
- 12 January 2026
- Original description
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.Read full original descriptionShow less
Registry for Patients With Desmoplastic Small Round Cell Tumor
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.
The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Inclusion: Participants must have a diagnosis of desmoplastic small round cell tumor; Participants may be of any age as long as the appropriate consent and assent may be obtained; Willing to provide historical and longitudinal clinical data.
Exclusion: Participant unwilling to provide consent or share historical and longitudinal clinical data.