Follow-up study of late health effects in childhood cancer survivors
Follows childhood cancer survivors over time to study late health effects of their treatment.
Plain-language title generated from the registry record
Registry title: The Swiss Childhood Cancer Survivor Study - Follow-up (SCCSS-FollowUp)
Key facts
- Where
- Basel, Bern, and Geneva, SwitzerlandSee the 3 sites
Where in Switzerland
- University Childen's Hospital BaselBasel, SwitzerlandTaking people
- University Children's Hospital BernBern, SwitzerlandTaking people
- University Hospital GenevaGeneva, SwitzerlandTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Bern
- Trial code
- NCT04732273
- Record updated
- 23 September 2025
- Original description
The SCCSS-FollowUp is a national, multicenter cohort study designed to investigate late effects in childhood cancer survivors in a prospective and longitudinal way. The study is embedded in regular follow-up care and inclusion in the study takes place in a step-wise approach. The investigators collect data from clinical examinations, laboratory and functional tests, and questionnaires to learn more about late effects of childhood cancer treatments.Read full original descriptionShow less
The Swiss Childhood Cancer Survivor Study - Follow-up (SCCSS-FollowUp)
The SCCSS-FollowUp is a national, multicenter cohort study designed to investigate late effects in childhood cancer survivors in a prospective and longitudinal way. The study is embedded in regular follow-up care and inclusion in the study takes place in a step-wise approach. The investigators collect data from clinical examinations, laboratory and functional tests, and questionnaires to learn more about late effects of childhood cancer treatments.
Inclusion: Registered in the Childhood Cancer Registry (ChCR) or treated and followed-up in a Swiss pediatric oncology (SPOG) clinic, but not registered in the ChCR because of residency in neighboring countries; Diagnosed at age 0 - 20 years; Childhood cancer treatment completed; All age categories at time of inclusion in the study (children, adolescents, adults); Written informed consent.
Exclusion: Childhood cancer survivors in a palliative or relapsed situation where no follow-up examinations are foreseen.
This prospective cohort study is based on the Childhood Cancer Registry (ChCR), a national, population-based cancer registry that includes all children and adolescents in Switzerland who were diagnosed with cancer at age 0-20 years. It includes patients diagnosed with leukemia, lymphoma, central nervous system tumors, and malignant solid tumors or Langerhans cell histiocytosis.