A Registry Following People with AL Amyloidosis Over Time
Collects information on people with AL amyloidosis to learn how the disease progresses.
Plain-language title generated from the registry record
Registry title: A Registry of AL Amyloidosis (ReAL)
Key facts
- Where
- Pavia, ItalySee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 99 years old?
Source: NCT04839003, who can take part
Where in Italy
- Fondazione IRCCS Policlinico San MatteoPavia, ItalyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Fondazione IRCCS Policlinico San Matteo di Pavia
- Trial code
- NCT04839003
- Record updated
- 16 April 2026
- Original description
The purpose of this protocol is to generate a large registry of patients with AL amyloidosis.Read full original descriptionShow less
A Registry to Investigate Real-world Natural History, Impact of Therapies and Patterns of Progression of AL Amyloidosis (ReAL)
The purpose of this protocol is to generate a large registry of patients with AL amyloidosis.
Inclusion: diagnosis of systemic AL amyloidosis; treatment-naïve (pre-treatment data collected at participating center available for retrospective part); age ≥18 years; ability to understand and willingness to sign an informed consent (patients who already sign informed consent for clinical data to be used in retrospective analyses will be accepted); planned (or ongoing) follow-up at participating center.
Exclusion: previous treatment for AL amyloidosis; non-AL amyloidosis.