Follows people with interstitial lung disease over time through clinic visits
Collects data and samples from adults with lung scarring diseases to study how they progress.
Key facts
- Who runs it
- University of Virginia
- Where
- Charlottesville, United StatesSee the site
- Trial code
- Registry title
- University of Virginia Natural History Study
- Status
- Enrolling by invitation
- People taking part
- 2,500 people, planned
- Started
- 28 Aug 2018
- Expected to end
- 31 Aug 2035
- Type of study
- Observational, 2 groups
- Treatments tested
- Interstitial Lung Disease
- Record updated
- 8 May 2024
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for patients seen at the University of Virginia lung clinic for interstitial lung disease. Family members who come with them can join as a comparison group.
- Age
- 18 years and older
- Sex
- All sexes can join
- Disease stage
- Patients seen in the University of Virginia ILD or Pulmonary clinic
Main reasons for not taking part
- Comparison group members (family members) cannot have interstitial lung disease
The registry criteria, word for word
Show all 3 criteriaShow less
Who can take part
- Patient presenting to University of Virginia ILD or Pulmonary clinic
- Family members accompanying patients (as control subjects)
Who cannot take part
- Control subjects cannot have ILD
Where in United States
- University of Virginia Health SystemCharlottesville, United StatesEnrolling by invitation
About the trial
What the trial wants to find out
Data and specimens will be collected longitudinally from patients seen in the UVA Interstitial Lung Disease (ILD) clinic in order to describe the phenotypic expression of various interstitial lung diseases. Samples will also be collected from a control group for comparison purposes.
Read full original descriptionShow less
All data will be entered into a repository for future research purposes or screening for new studies that become available. This data will help identify trends and hopefully lead to a better understanding of the disease progression, treatment options, and outcomes.
The 2 groups in the trial
- ILD Cohort
Patients with Interstitial Lung Disease seen at the UVA ILD or Pulmonary Clinic
Treatment: Interstitial Lung Disease
- Control Cohort
Control group of patients and family members of those with an Interstitial Lung Disease
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- A Study of the Natural Progression of Interstitial Lung Disease
- Plain-language title
- Follows people with interstitial lung disease over time through clinic visitsGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 8 May 2024