A Registry Following Patients With Multiple Myeloma Across Italy
This study records how multiple myeloma is diagnosed and treated in Italian hematology centers.
Plain-language title generated from the registry record
Registry title: A "Physician & Patient-powered" Cohort Registry (MY MYELOMA)
Key facts
- Where
- Ancona, Bari, Bologna, Brescia, Catania, Florence, Genova, Milan, Monza, Naples, Novara, Parma, Pavia, Rimini, Roma, San Giovanni Rotondo, Terni, Torino, Udine, and Varese, ItalySee the 27 sites
Where in Italy
- AOU Ospedali Riuniti Umberto IAncona, ItalyTaking people
- Policlinico di BariBari, ItalyTaking people
- Policlinico di Bari - Ematologia con TrapiantoBari, ItalyNot yet recruiting
- Policlinico S. OrsolaBologna, ItalyTaking people
- A.O. Spedali Civili di BresciaBrescia, ItalyTaking people
- AOU Policlinico Vittorio EmanueleCatania, ItalyTaking people
- A.O.U di CareggiFlorence, ItalyTaking people
- A.O.U Policlinico S. MartinoGenova, ItalyTaking people
- Asst Santi Paolo E CarloMilan, ItalyTaking people
- Fondazione IRCCS Ca' Grande Ospedale Maggiore PoliclinicoMilan, ItalyTaking people
- Istituto Nazionale TumoriMilan, ItalyTaking people
- Ospedale Niguarda Cà GrandeMilan, ItalyTaking people
- Ospedale San Gerardo di MonzaMonza, ItalyTaking people
- A. O. U. Federico IINaples, ItalyNot yet recruiting
- Ospedale MaggioreNovara, ItalyTaking people
- A.O.U di ParmaParma, ItalyTaking people
- Policlinico San Matteo Fondazione IRCCSPavia, ItalyTaking people
- Ospedale "Infermi"Rimini, ItalyNo longer taking part
- Ospedale S. EugenioRoma, ItalyTaking people
- Policlinico Umberto I - Università La SapienzaRoma, ItalyTaking people
- Policlinico Universitario Campus BiomedicoRoma, ItalyTaking people
- IRCCS Ospedale Casa Sollievo della SofferenzaSan Giovanni Rotondo, ItalyTaking people
- A.O. Santa MariaTerni, ItalyTaking people
- A.O. Ordine MaurizianoTorino, ItalyTaking people
- AOU Città della Salute e della Scienza di TorinoTorino, ItalyTaking people
- Policlinico Universitario di UdineUdine, ItalyTaking people
- Ospedale di CircoloVarese, ItalyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Fondazione EMN Italy Onlus
- Trial code
- NCT05001087
- Record updated
- 9 September 2026
- Original description
The aim of this observational study is the creation of a national multiple myeloma registry to monitor the current routine clinical practice in Italy and describe the standard of care adopted for the diagnosis and treatment of patients with multiple myeloma in the different Italian hematology centers.Read full original descriptionShow less
A "Physician & Patient-powered" Cohort Registry
The aim of this observational study is the creation of a national multiple myeloma registry to monitor the current routine clinical practice in Italy and describe the standard of care adopted for the diagnosis and treatment of patients with multiple myeloma in the different Italian hematology centers.
Inclusion: Patients of both sexes; Age ≥ 18 years; Diagnosis of active/symptomatic multiple myeloma (according to CRAB and biological parameters) no earlier than 1st January 2019; Able and willing to sign an informed consent form.
Exclusion: None considered.