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Taking people in NorwayNo phase

Studies genes that may cause amyotrophic lateral sclerosis in Norway

Looks for genetic causes of ALS in people aged 16 to 100.

Plain-language title generated from the registry record
Registry title: Genetic Study of Amyotrophic Lateral Sclerosis in Norway

Key facts

Where
Bergen, Bodø, Drammen, Førde, Grålum, Haugesund, Kristiansand, Lillehammer, Lørenskog, Molde, Namsos, Oslo, Skien, Stavanger, Tønsberg, Tromsø, and Trondheim, NorwaySee the 17 sites

Could this be for you?

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 16 and 100 years old?

Source: NCT05119387, who can take part

Where in Norway

  • Haukeland University Hospital, Department of NeurologyBergen, NorwayTaking people
  • Nordland Hospital Trust, Department of NeurologyBodø, NorwayTaking people
  • Vestre Viken Hospital Trust, Department of NeurologyDrammen, NorwayTaking people
  • Førde Hospital Trust, Department of NeurologyFørde, NorwayTaking people
  • Østfold Hospital Trust, Department of NeurologyGrålum, NorwayTaking people
  • Fonna Hospital Trust, Department of NeurologyHaugesund, NorwayTaking people
  • Sørlandet Hospital Trust, Department of NeurologyKristiansand, NorwayTaking people
  • Innlandet Hospital Trust, Department of NeurologyLillehammer, NorwayTaking people
  • Akershus University Hospital, Department of NeurologyLørenskog, NorwayTaking people
  • Møre and Romsdal Hospital Trust, Department of NeurologyMolde, NorwayTaking people
  • Nord-Trøndelag Hospital Trust, Department of NeurologyNamsos, NorwayTaking people
  • Oslo University Hospital, Department of NeurologyOslo, NorwayTaking people
  • Telemark Hospital, Department of NeurologySkien, NorwayTaking people
  • Stavanger University Hospital, Department of NeurologyStavanger, NorwayTaking people
  • Vestfold Hospital Trust, Department of NeurologyTønsberg, NorwayTaking people
  • University hospital of North Norway, Department of NeurologyTromsø, NorwayTaking people
  • St. Olavs Hospital, Department of NeurologyTrondheim, NorwayTaking people

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
Print a page for my doctor

Trial details

Who runs it
Sykehuset Telemark
Trial code
NCT05119387
Record updated
19 May 2026
Original description
The purpose of this study is to explore the genetic causes relevant for ALS development in Norway.Read full original descriptionShow less

Genetisk Studie av Amyotrofisk Lateral Sklerose (ALS)

The purpose of this study is to explore the genetic causes relevant for ALS development in Norway.

Inclusion: Probable or definite ALS; Eligible to consent.

Exclusion: not competent to give consent.

ClinicalTrials.gov NCT05119387