Eosinophilic Gastrointestinal Disorders Registry
Key facts
- Who runs it
- Ann & Robert H Lurie Children's Hospital of Chicago
- Where
- Chicago, United StatesSee the site
- Trial code
- Status
- Recruiting
- People taking part
- 500 people, planned
- Started
- 18 Dec 2020
- Expected to end
- Dec 2035
- Type of study
- Observational
- Record updated
- 18 March 2026
Who can take part
- Age
- 1 year to 25 years
- Sex
- Women and men
The registry criteria, word for word
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Who can take part
- Patients with an established diagnosis of an EGID, based on pathology findings from an endoscopy or colonoscopy with biopsies
- Patients suspected of having an EGID and undergoing endoscopic evaluation for further assessment
Who cannot take part
- Patients who do not consent to participate
Check if you might fit
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 1 and 25 years old?
Where in United States
- Ann & Robert H. Lurie Children's Hospital of ChicagoChicago, United StatesContact: Zeinab Dehghani, MDTaking people
About the trial
What the trial wants to find out
The purpose of this study is to learn more about Eosinophilic Gastrointestinal Disorders (EGIDs). With this registry we hope to find out more about the symptoms that patients have during their treatment, the quality of life they have with the diagnosis, what the disease looks like throughout the different treatment methods, and if there is a connection between EGIDs and connective tissue disorders.
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The goal of this study is to be able to better understand EGIDs and use information gained from all the information collected on this study for more precise treatments in the future. We want to create a large collection of samples, called a biorepository, to learn the most about EGIDs as possible. When the samples are collected, which will occur at procedures directed by your child's doctor as part of their standard of care, they will be stored for an unlimited amount of time to perform experiments on these samples and to gather information about EGIDs
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Fit questions
- Built from NCT05199532, who can take part
- Record updated
- 18 March 2026