Long-term study collecting real-world data from people with kidney cancer
Collects health data and patient reported experiences from adults with kidney cancer over time.
Plain-language title generated from the registry record
Registry title: National PROspective Infrastructure for Renal Cell Carcinoma (PRO-RCC)
Key facts
- Where
- 's-Hertogenbosch, Amersfoort, Amsterdam, Apeldoorn, Arnhem, Breda, Deventer, Dordrecht, Eindhoven, Emmen, Groningen, Haarlem, Hilversum, Leeuwarden, Maastricht, Nieuwegein, Nijmegen, Roosendaal, Rotterdam, The Hague, Utrecht, Venray, and Zwolle, NetherlandsSee the 26 sites
Where in Netherlands
- Jeroen Bosch Ziekenhuis's-Hertogenbosch, NetherlandsTaking people
- Meander Medisch CentrumAmersfoort, NetherlandsTaking people
- Amsterdam UMC Locatie VUMCAmsterdam, NetherlandsTaking people
- Gelre ziekenhuisApeldoorn, NetherlandsTaking people
- RijnstateArnhem, NetherlandsTaking people
- Amphia ZiekenhuisBreda, NetherlandsTaking people
- Deventer ZiekenhuisDeventer, NetherlandsTaking people
- Albert SchweitzerDordrecht, NetherlandsTaking people
- Catharina ZiekenhuisEindhoven, NetherlandsTaking people
- Máxima MCEindhoven, NetherlandsTaking people
- TreantEmmen, NetherlandsTaking people
- UMCGGroningen, NetherlandsTaking people
- Spaarne GasthuisHaarlem, NetherlandsTaking people
- Tergooi MCHilversum, NetherlandsTaking people
- Medisch Centrum LeeuwardenLeeuwarden, NetherlandsTaking people
- Maastricht UMCMaastricht, NetherlandsTaking people
- St. Antonius ZiekenhuisNieuwegein, NetherlandsTaking people
- Canisius Wilhelmina ZiekenhuisNijmegen, NetherlandsTaking people
- Bravis ZiekenhuisRoosendaal, NetherlandsTaking people
- Erasmus MCRotterdam, NetherlandsTaking people
- Maasstad ZiekenhuisRotterdam, NetherlandsTaking people
- St. Franciscus ziekenhuisRotterdam, NetherlandsTaking people
- Haaglanden Medisch CentrumThe Hague, NetherlandsTaking people
- UMC UtrechtUtrecht, NetherlandsTaking people
- ViecuriVenray, NetherlandsTaking people
- IsalaZwolle, NetherlandsTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- PROspective Renal Cancer Cohort Foundation
- Trial code
- NCT05326620
- Record updated
- 6 June 2025
- Original description
PRO-RCC is a nationwide long-term cohort for the collection of real-world clinical data, patient reported outcome measures (PROMs) and patient reported experience measures (PREMs) that provides an infrastructure for observational research and (randomized) interventional studies with the TwiCs (Trial within cohorts) design.Read full original descriptionShow less
PROspective Renal Cancer Cohort (PRO-RCC)
PRO-RCC is a nationwide long-term cohort for the collection of real-world clinical data, patient reported outcome measures (PROMs) and patient reported experience measures (PREMs) that provides an infrastructure for observational research and (randomized) interventional studies with the TwiCs (Trial within cohorts) design.
Inclusion: newly diagnosed patients with RCC or synchronous metastatic RCC; metachronous metastasized RCC; age >18 years; capable of understanding Dutch language.
Exclusion: n/a.