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Resuscitation Registry in CHD

This trial has no sites in United States.

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Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

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Trial details

Who runs it
Leipzig Heart Science gGmbH
Trial code
NCT05373498
Record updated
16 January 2025
Original description
Children with congenital heart defects are far more likely to suffer a cardiovascular arrest and be in the need of cardiopulmonary resuscitation than healthy children or those with diseases of other organ systems, especially after cardiothoracic surgery. Due to a lack of data, the exact number of resuscitations in this patient cohort, as well as the morbidity and mortality, is unknown. This study aims to register all cardiovascular arrests in pediatric patients with congenital heart disease and study the mortality and morbidity with a special focus on the neurodevelopmental outcome.Read full original descriptionShow less

Pediatric Resuscitation Outcome in Children With Heart Disease

Children with congenital heart defects are far more likely to suffer a cardiovascular arrest and be in the need of cardiopulmonary resuscitation than healthy children or those with diseases of other organ systems, especially after cardiothoracic surgery. Due to a lack of data, the exact number of resuscitations in this patient cohort, as well as the morbidity and mortality, is unknown. This study aims to register all cardiovascular arrests in pediatric patients with congenital heart disease and study the mortality and morbidity with a special focus on the neurodevelopmental outcome.

Inclusion: congenital heart defects, congenital heart arrhythmia, familial cardiomyopathies, inflammatory heart diseases; pediatric resuscitation (chest compressions ≥2min) in hospital or on arrival in hospital; age <18 years; informed consent of the parents or legal representative.

Exclusion: absence or withdrawal of informed consent of the parents or legal representative; do-not-resuscitate-order (DNR).

ClinicalTrials.gov NCT05373498