Resuscitation Registry in CHD
Key facts
- Where
- Berlin, Bonn, and Leipzig, GermanySee the 3 sites
Where in Germany
- Deutsches Herzzentrum BerlinBerlin, GermanyContact: Katharina Schmitt, Prof. Dr. med.Not yet recruiting
- Universitätsklinikum Bonn AöRBonn, GermanyContact: Valérie Amann, Dr.Not yet recruiting
- Herzzentrum LeipzigLeipzig, GermanyContact: Franziska Markel, Dr. med.Taking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- Leipzig Heart Science gGmbH
- Trial code
- NCT05373498
- Record updated
- 16 January 2025
- Original description
Children with congenital heart defects are far more likely to suffer a cardiovascular arrest and be in the need of cardiopulmonary resuscitation than healthy children or those with diseases of other organ systems, especially after cardiothoracic surgery. Due to a lack of data, the exact number of resuscitations in this patient cohort, as well as the morbidity and mortality, is unknown. This study aims to register all cardiovascular arrests in pediatric patients with congenital heart disease and study the mortality and morbidity with a special focus on the neurodevelopmental outcome.Read full original descriptionShow less
Pediatric Resuscitation Outcome in Children With Heart Disease
Children with congenital heart defects are far more likely to suffer a cardiovascular arrest and be in the need of cardiopulmonary resuscitation than healthy children or those with diseases of other organ systems, especially after cardiothoracic surgery. Due to a lack of data, the exact number of resuscitations in this patient cohort, as well as the morbidity and mortality, is unknown. This study aims to register all cardiovascular arrests in pediatric patients with congenital heart disease and study the mortality and morbidity with a special focus on the neurodevelopmental outcome.
Inclusion: congenital heart defects, congenital heart arrhythmia, familial cardiomyopathies, inflammatory heart diseases; pediatric resuscitation (chest compressions ≥2min) in hospital or on arrival in hospital; age <18 years; informed consent of the parents or legal representative.
Exclusion: absence or withdrawal of informed consent of the parents or legal representative; do-not-resuscitate-order (DNR).