Registry Collecting Data on a Rare Blood Cancer Called BPDCN
Collects information on patients with a rare blood cancer, BPDCN, and their treatments.
Key facts
- Who runs it
- Immune Oncology Research Institute
- Where
- Amman, JordanSee the siteAlso in 14 other countries, 21 sites
- Trial code
- Registry title
- Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) International Registry
- Status
- Recruiting
- People taking part
- 200 people, planned
- Started
- 1 Jul 2022
- Expected to end
- Jul 2032
- Type of study
- Observational
- Record updated
- 5 June 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for people with a diagnosis of blastic plasmacytoid dendritic cell neoplasm (BPDCN), a very rare blood cancer. It collects data on how the disease is treated.
- Sex
- All sexes can join.
- Disease stage
- A diagnosis of BPDCN. No stage is named.
The registry criteria, word for word
Show all 3 criteriaShow less
Who can take part
- Diagnosis of BPDCN
- Signed informed consent form for prospective patients
Who cannot take part
- -
Where in Jordan
Also in 14 other countries, 21 sites
- King Hussein Cancer Center (KHCC)Amman, JordanContact: Zaid Abdel Rahman, MDTaking people
About the trial
What the trial wants to find out
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) is a very rare hematologic malignancy. Despite recent advances, at present there is no consensus on the optimal treatment of BPDCN. The optimal therapy of disease remains to be determined, and due to the rarity of cases, there is a need for international collaboration to collect data on BPDCN clinical presentations, diagnostics, treatment regimens and outcomes. Therefore, the objectives of this study are: (1) to build a large database of patients with BPDCN, (2) to investigate the characteristics and outcome of the disease with different treatment regimens, (3) to evaluate prognostic factors, and (4) to generate data-based prospective treatment recommendations.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) International Registry
- Plain-language title
- Registry Collecting Data on a Rare Blood Cancer Called BPDCNGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 5 June 2026