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Taking people in JordanNo phase

Registry Collecting Data on a Rare Blood Cancer Called BPDCN

Collects information on patients with a rare blood cancer, BPDCN, and their treatments.

Key facts

Who runs it
Immune Oncology Research Institute
Where
Amman, JordanSee the siteAlso in 14 other countries, 21 sites
Trial code
Registry title
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) International Registry
Status
Recruiting
People taking part
200 people, planned
Started
1 Jul 2022
Expected to end
Jul 2032
Type of study
Observational
Record updated
5 June 2026

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The registry is looking for people with a diagnosis of blastic plasmacytoid dendritic cell neoplasm (BPDCN), a very rare blood cancer. It collects data on how the disease is treated.

Sex
All sexes can join.
Disease stage
A diagnosis of BPDCN. No stage is named.

The registry criteria, word for word

Show all 3 criteriaShow less

Who can take part

  • Diagnosis of BPDCN
  • Signed informed consent form for prospective patients

Who cannot take part

  • -

Where in Jordan

Also in 14 other countries, 21 sites

  • King Hussein Cancer Center (KHCC)Amman, JordanContact: Zaid Abdel Rahman, MDTaking people

About the trial

What the trial wants to find out

Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) is a very rare hematologic malignancy. Despite recent advances, at present there is no consensus on the optimal treatment of BPDCN. The optimal therapy of disease remains to be determined, and due to the rarity of cases, there is a need for international collaboration to collect data on BPDCN clinical presentations, diagnostics, treatment regimens and outcomes. Therefore, the objectives of this study are: (1) to build a large database of patients with BPDCN, (2) to investigate the characteristics and outcome of the disease with different treatment regimens, (3) to evaluate prognostic factors, and (4) to generate data-based prospective treatment recommendations.

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) International Registry
Plain-language title
Registry Collecting Data on a Rare Blood Cancer Called BPDCNGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 12 November 2026.
Record updated
5 June 2026