Italian registry tracking people with transthyretin amyloidosis over time
Records people with ATTR amyloidosis to follow how the disease changes.
Plain-language title generated from the registry record
Registry title: The Italian Transthyretin Amyloidosis Web-Network
Key facts
- Where
- Ancona, Bari, Bergamo, Brescia, Cagliari, Cosenza, Ivrea, Legnano, Milan, Monza, Orbassano, Padova, Pavia, Perugia, Pescara, Roma, Salerno, Sassari, Siena, Torino, Treviglio, Vercelli, and Vicenza, ItalySee the 30 sites
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 99 years old?
Source: NCT05444920, who can take part
Where in Italy
- AOU Ospedali RiunitiAncona, ItalyNot yet recruiting
- Policlinico di BariBari, ItalyNot yet recruiting
- Asst Papa Giovanni XXIIIBergamo, ItalyNot yet recruiting
- ASST Spedali Civili di BresciaBrescia, ItalyNot yet recruiting
- Ospedale Oncologico Armando BusincoCagliari, ItalyNot yet recruiting
- Azienda Ospedaliera di CosenzaCosenza, ItalyNot yet recruiting
- Presidio Ospedaliero di IvreaIvrea, ItalyNot yet recruiting
- ASST Ovest Milanese - Ospedale di LegnanoLegnano, ItalyNot yet recruiting
- Asst Santi Paolo E CarloMilan, ItalyNot yet recruiting
- Fondazione IRCCS Cà Granda Ospedale Maggiore PoliclinicoMilan, ItalyNot yet recruiting
- IRCCS Istituto Clinico HumanitasMilan, ItalyNot yet recruiting
- Istituto Auxologico ItalianoMilan, ItalyNot yet recruiting
- Istituto MonzinoMilan, ItalyNot yet recruiting
- IRCCS San Gerardo MonzaMonza, ItalyNot yet recruiting
- Aou San Luigi GonzagaOrbassano, ItalyNot yet recruiting
- Azienda Ospedale Università di PadovaPadova, ItalyNot yet recruiting
- Fondazione IRCCS Policlinico San MatteoPavia, ItalyTaking people
- Azienda Ospedaliera di PerugiaPerugia, ItalyNot yet recruiting
- Ospedale Civile ASL PescaraPescara, ItalyNot yet recruiting
- Azienda Ospedaliera Sant AndreaRoma, ItalyNot yet recruiting
- Ematologia ASL Roma 1Roma, ItalyNot yet recruiting
- Fondazione Policlinico Universitario Agostino Gemelli CARDIOLOGIARoma, ItalyNot yet recruiting
- Policlinico Universitario Agostino Gemelli NEUROLOGIARoma, ItalyNot yet recruiting
- Plesso Ospedaliero "Andrea Tortora" di PaganiSalerno, ItalyNot yet recruiting
- Azienda Ospedaliero-Universitaria di SassariSassari, ItalyNot yet recruiting
- Azienda Ospedaliero Universitaria SeneseSiena, ItalyNot yet recruiting
- Ospedale San Giovanni BoscoTorino, ItalyNot yet recruiting
- l'Ospedale di Treviglio-CaravaggioTreviglio, ItalyNot yet recruiting
- Osp. Sant'AndreaVercelli, ItalyNot yet recruiting
- Azienda ULSS 8 BericaVicenza, ItalyNot yet recruiting
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Fondazione IRCCS Policlinico San Matteo di Pavia
- Trial code
- NCT05444920
- Record updated
- 27 March 2026
- Original description
The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.Read full original descriptionShow less
The Italian Transthyretin Amyloidosis Web-Network (ITA-WebNet)
The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.
Inclusion: Suspected diagnosis of systemic and localized amyloidosis; age .18 years; ability to understand and willingness to sign an informed consent (patients who already sign informed consent for clinical data to be used in retrospective analyses will be accepted); planned (or ongoing) follow-up at participating center.
Exclusion: Diagnosis of light chain (AL) amyloidosis.