Registry following adults with lupus in Argentina over time
Records real-world care and outcomes of adults with systemic lupus erythematosus in Argentina.
Plain-language title generated from the registry record
Registry title: Argentinian Prospective Registry of Patients With Lupus
Key facts
- Where
- La Plata, ArgentinaSee the site
Where in Argentina
- Lucila GarciaLa Plata, ArgentinaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Sociedad Argentina de Reumatologia
- Trial code
- NCT05470569
- Record updated
- 22 July 2022
- Original description
In Latin America, information about patients with systemic lupus erythematosus (SLE) is limited. Multicenter studies are needed to obtain "real world data '' and to carry out longer follow-ups. The purpose of this project is to design a cohort of Argentinian patients with SLE to describe "our real setting" and to identify possible limitations in access to specialized consultations and treatments.Read full original descriptionShow less
Prospective Registry of Patients With Systemic Lupus Erythematosus of the Argentinian Society of Rheumatology
In Latin America, information about patients with systemic lupus erythematosus (SLE) is limited. Multicenter studies are needed to obtain "real world data '' and to carry out longer follow-ups. The purpose of this project is to design a cohort of Argentinian patients with SLE to describe "our real setting" and to identify possible limitations in access to specialized consultations and treatments.
Inclusion: Patients ≥ 18 years of age; Classified as SLE (according to the 1982/1997 American College of Rheumatology criteria and/or Systemic Lupus International Collaborating Clinics criteria for SLE); Less than 5 years from meeting SLE criteria; Informed consent signature.
Exclusion: Diagnosis of other systemic autoimmune diseases or overlap syndromes; Patients who have been transferred to other centers.