Tourette Discrimination (TD) Stigma Scale
Key facts
- Where
- Winston-Salem, United StatesSee the site
Where in United States
- Wake Forest University Health SciencesWinston-Salem, United StatesNo longer taking part
Trial details
- Who runs it
- Wake Forest University Health Sciences
- Trial code
- NCT05696769
- Record updated
- 10 September 2025
- Original description
The goal of this qualitative study is to understand the challenges of stigmatization and discrimination in children and young adults with Chronic Tic Disorders (CTD), including Tourette Syndrome. Measuring and understanding how stigma affects those with CTD will help inform future work.Read full original descriptionShow less
Measuring Stigmatization in Chronic Tic Disorders: Development and Validation of the Tourette Discrimination-Stigmatization (TD-STIGMA) Scale
The goal of this qualitative study is to understand the challenges of stigmatization and discrimination in children and young adults with Chronic Tic Disorders (CTD), including Tourette Syndrome. Measuring and understanding how stigma affects those with CTD will help inform future work.
Inclusion: CTD Cohort; Physician-confirmed diagnosis of CTD based on the Diagnostic and Statistical Manual for Mental Disorders-Fifth Edition (DSM-V) criteria; 8-30 years old; Parent/caregivers, supporters, medical providers, advocate cohort (s); Involved in the care of a child, youth or young adult with CTD; The known person with CTD has had tics for more than a year at the time of screening.
Exclusion: Any other condition that, in the Principle Investigator's opinion, would limit the participant's (or parent's) ability to understand study measures; Parent/caregivers, supporters, medical providers, advocate cohort (s); CTD Cohort; Non-English speaking; Diagnosis of intellectual disability; Diagnosis of psychosis; The known person with CTD has an intellectual disability or diagnosis of psychosis.