Registry Tracking People With ME/CFS in Germany
Collects information on people of all ages with ME/CFS in Germany.
Plain-language title generated from the registry record
Registry title: Multi-Center Registry for ME/CFS
Key facts
- Where
- Munich, GermanySee the site
Where in Germany
- MRI Chronic Fatigue Center for Young People (MCFC) Children's Hospital, Technical University of Munich & Munich Municipal HospitalMunich, GermanyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Technical University of Munich
- Trial code
- NCT05778006
- Record updated
- 10 January 2025
- Original description
The ME/CFS study (MECFS-R) aims to create a large-scale registry that provides data on epidemiology, phenotypes, and disease trajectories of and health care for ME/CFS at any age in Germany, which can be used for future clinical trials.Read full original descriptionShow less
Multi-Center Registry for ME/CFS, Including ME/CFS Following Epstein-Barr Virus-Associated Infectious Mononucleosis (EBV-IM) or Coronavirus Disease 2019 (Covid-19)
The ME/CFS study (MECFS-R) aims to create a large-scale registry that provides data on epidemiology, phenotypes, and disease trajectories of and health care for ME/CFS at any age in Germany, which can be used for future clinical trials.
Inclusion: ME/CFS diagnosis (ICD-10 G93.3) based on internationally established criteria; Informed consent by patients and/or guardian(s).
Exclusion: No ME/CFS (ICD-10 G93.3); No informed consent.