Follows adults with myeloproliferative neoplasm in an Asian patient registry
Collects health information from adults with blood disorders across several Asian centers.
Plain-language title generated from the registry record
Registry title: Asian Myeloproliferative Neoplasm (MPN) Registry
Key facts
- Where
- Hong Kong, Hong KongSee the site
Where in Hong Kong
- Department of Medicine, Queen Mary HospitalHong Kong, Hong KongTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- The University of Hong Kong
- Trial code
- NCT05882773
- Record updated
- 31 May 2023
- Original description
This is a multinational, multicenter, prospective and retrospective, observational, cohort study of patients with myeloproliferative neoplasm.Read full original descriptionShow less
Asian Myeloproliferative Neoplasm (MPN) Registry - An Asian Myeloid Working Group (AMWG) Project.
This is a multinational, multicenter, prospective and retrospective, observational, cohort study of patients with myeloproliferative neoplasm.
Inclusion: Age ≥ 18 years old at the time of diagnosis of MPN; Subject was diagnosed with one of the following disorders according to the 2017 WHO classification (for patients diagnosed before 2017, the bone marrow reports will be re-evaluated according to the 2017 WHO classification):; Polycythaemia vera; Essential thrombocythemia; Primary myelofibrosis, pre-fibrotic/early stage; Primary myelofibrosis, overt fibrotic stage; Post-polycythaemia vera myelofibrosis; Post-essential thrombocythaemia myelofibrosis; MPN-unclassifiable; All subjects need to provide informed consent.
Exclusion: Subject was diagnosed with myelodysplastic syndrome, myelodysplastic syndrome/myeloproliferative neoplasm, or chronic myeloid leukaemia BCR-ABL1 positive, under the 2017 WHO classification; A subject will not be eligible if he/she meets any of the following criteria:.