Registry and sample bank for people with synovial sarcoma
Collects data and samples from people with synovial sarcoma for future research.
Key facts
- Who runs it
- Children's Hospital of Philadelphia
- Where
- Philadelphia, United StatesSee the site
- Trial code
- Registry title
- Synovial Sarcoma Registry / Biospecimen Repository
- Status
- Recruiting
- People taking part
- 1,000 people, planned
- Started
- 12 Jun 2023
- Expected to end
- Jun 2033
- Type of study
- Observational
- Record updated
- 9 June 2026
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for people of any age who have been diagnosed with synovial sarcoma. It collects data and samples for future research.
- Age
- Any age.
- Sex
- Men and women can join.
- Disease stage
- A reported diagnosis of synovial sarcoma.
Main reasons for not taking part
- Sarcomas that do not fit the definition used for this registry
- People who are unwilling to take part
- People who are unwilling or unable to give written consent
The registry criteria, word for word
Show all 6 criteriaShow less
Who can take part
- Males or females of any age
- Reported diagnosis of synovial sarcoma
- Informed consent from subject (aged ≥18 years) or parent/guardian
Who cannot take part
- Individuals with sarcomas that do not fit the definition of those considered for this registry
- Individuals who are unwilling to participate
- Individuals who are unwilling or unable to provide written consent
Where in United States
- Children's Hospital of PhiladelphiaPhiladelphia, United StatesContact: Lauren GutsteinTaking people
About the trial
What the trial wants to find out
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.
Read full original descriptionShow less
Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Synovial Sarcoma Registry and Biospecimen Repository
- Plain-language title
- Registry and sample bank for people with synovial sarcomaGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 9 June 2026