Synovial Sarcoma Registry / Biospecimen Repository
Key facts
- Where
- Philadelphia, United StatesSee the site
Where in United States
- Children's Hospital of PhiladelphiaPhiladelphia, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Children's Hospital of Philadelphia
- Trial code
- NCT05910307
- Record updated
- 9 June 2026
- Original description
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.Read full original descriptionShow less
Synovial Sarcoma Registry and Biospecimen Repository
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.
Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Inclusion: Males or females of any age; Reported diagnosis of synovial sarcoma; Informed consent from subject (aged ≥18 years) or parent/guardian.
Exclusion: Individuals with sarcomas that do not fit the definition of those considered for this registry; Individuals who are unwilling to participate; Individuals who are unwilling or unable to provide written consent.