Lupus Registry Collects Patient Data and Samples for Future Research
Stores health records and samples from adults with lupus to support future research.
Plain-language title generated from the registry record
Registry title: Lupus Landmark Study: A Prospective Registry and Biorepository
Key facts
- Where
- Calgary, Edmonton, Montreal, Québec, Toronto, and Winnipeg, CanadaSee the 6 sites
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 110 years old?
Source: NCT05934149, who can take part
Where in Canada
- University Of CalgaryCalgary, CanadaTaking people
- University of Alberta HospitalEdmonton, CanadaTaking people
- McGill University Health CentreMontreal, CanadaTaking people
- CHU de Quebec-Universite LavalQuébec, CanadaTaking people
- University Health Network-Toronto Western HospitalToronto, CanadaTaking people
- University of ManitobaWinnipeg, CanadaTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Lupus Research Alliance
- Trial code
- NCT05934149
- Record updated
- 15 April 2026
- Original description
The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).Read full original descriptionShow less
Lupus Nexus Landmark Study: A Prospective Registry and Biorepository
The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).
Inclusion: Able to understand and comply with study procedures and voluntarily sign a written informed consent document; Age 18 years or older at the time of enrollment; Fulfill criteria for SLE based on one or more of the following classifications systems:; Systemic Lupus Erythematosus International Collaborating Clinic (SLICC) 2012 criteria; European Alliance of Associations for Rheumatology (EULAR)/American College of Rheumatology (ACR) 2019 criteria; 1997 revised ACR criteria; or Lupus is present per clinical assessment.
Exclusion: Not able to obtain consent; Not able to meet protocol visit requirements; Pregnant at the time of enrollment.