Lupus Registry Collects Patient Data and Samples for Future Research
Stores health records and samples from adults with lupus to support future research.
Plain-language title generated from the registry record
Registry title: Lupus Landmark Study: A Prospective Registry and Biorepository
Key facts
- Where
- Atlanta, Beverly Hills, Birmingham, Boston, Chapel Hill, Chicago, Cleveland, Dallas, Los Angeles, Manhasset, Miami, Nashville, New York, St Louis, Syracuse, Tucson, Washington D.C., and Worcester, United StatesSee the 19 sites
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 110 years old?
Source: NCT05934149, who can take part
Where in United States
- Emory UniversityAtlanta, United StatesTaking people
- Wallace Rheumatic Studies CenterBeverly Hills, United StatesTaking people
- University of Alabama at BirminghamBirmingham, United StatesTaking people
- Brigham and Women's HospitalBoston, United StatesTaking people
- UNC- Chapel HillChapel Hill, United StatesTaking people
- University of ChicagoChicago, United StatesTaking people
- The MetroHealth SystemCleveland, United StatesTaking people
- UT Southwestern Medical CenterDallas, United StatesTaking people
- UCLALos Angeles, United StatesNot yet recruiting
- The Feinstein Institutes for Medical ResearchManhasset, United StatesTaking people
- University of MiamiMiami, United StatesTaking people
- Vanderbilt University Medical CenterNashville, United StatesTaking people
- Columbia University Medical CenterNew York, United StatesNot yet recruiting
- Northwell HealthNew York, United StatesTaking people
- Washington UniversitySt Louis, United StatesTaking people
- SUNY UpstateSyracuse, United StatesTaking people
- University of ArizonaTucson, United StatesTaking people
- Georgetown UniversityWashington D.C., United StatesNot yet recruiting
- University of Massachusetts Memorial HealthWorcester, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Lupus Research Alliance
- Trial code
- NCT05934149
- Record updated
- 15 April 2026
- Original description
The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).Read full original descriptionShow less
Lupus Nexus Landmark Study: A Prospective Registry and Biorepository
The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).
Inclusion: Able to understand and comply with study procedures and voluntarily sign a written informed consent document; Age 18 years or older at the time of enrollment; Fulfill criteria for SLE based on one or more of the following classifications systems:; Systemic Lupus Erythematosus International Collaborating Clinic (SLICC) 2012 criteria; European Alliance of Associations for Rheumatology (EULAR)/American College of Rheumatology (ACR) 2019 criteria; 1997 revised ACR criteria; or Lupus is present per clinical assessment.
Exclusion: Not able to obtain consent; Not able to meet protocol visit requirements; Pregnant at the time of enrollment.