Tests a home parenting program for parents with intellectual disabilities
Tests a home-based parenting program for parents with intellectual disabilities at risk of neglect.
Key facts
- Who runs it
- Örebro University, Sweden
- Where
- Enköping, Jönköping, Motala, Tierp, and Uppsala, SwedenSee the 5 sites
- Trial code
- Registry title
- Evaluation of a Home-based Parenting Support Program: Parenting Young Children
- Status
- Recruiting
- People taking part
- 60 people, planned
- Started
- 8 Sept 2022
- Planned end
- 30 Jun 2026
- Type of study
- Interventional, 2 groupsOne group gets an existing treatment, for comparison.
- Treatments tested
- Parenting Young Children
- Treatment as Usual
- Record updated
- 14 August 2025
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The trial is looking for parents with intellectual or developmental disabilities who have children aged 0-9 years living at home and need tailored parenting support. It tests a home-based parenting program.
- Age
- Parents of children aged 0-9 years. No age range for the parents is given in the record.
- Sex
- All sexes can join.
- Disease stage
- Parents with intellectual disability or other cognitive disabilities (for example ADHD and ASD), assessed by social services as needing tailored parenting support.
Main reasons for not taking part
- Ongoing substance abuse
- Mental illness that may affect parent management training
- Ongoing child abuse
The registry criteria, word for word
Show all 4 criteriaShow less
Who can take part
- Parents with IDDs, including ID and other cognitive disabilities (e.g., ADHD and ASD)
- Parents must have children aged 0-9 years living at home and be assessed by the social services to be eligible for tailored parenting support
Who cannot take part
- Ongoing substance abuse, and/or mental illness of such nature and degree that it may affect parent management training
- Ongoing child abuse
Where in Sweden
- Social Welfare OfficeEnköping, SwedenContact: Helena SvelanderTaking people
- Social Welfare OfficeJönköping, SwedenContact: Ida JönssonTaking people
- Social Welfare OfficeMotala, SwedenContact: Anna NylénTaking people
- Social Welfare OfficeTierp, SwedenContact: Ann NilssonTaking people
- Social Welfare OfficeUppsala, SwedenContact: Anette WettervikTaking people
About the trial
What the trial wants to find out
Background: Parents with intellectual and developmental disabilities (IDDs) have a tendency to provide insufficient caregiving and often need parenting support to prevent neglect and child removal. However, parents with IDDs are not provided with appropriate support, and there is a lack of evidence-based programmes tailored to these parents' needs. Parenting Young Children (PYC) is a home-based parenting programme developed for parents with IDDs. PYC has shown promising clinical results in interview-based studies, but there is no evidence of its effectiveness. The purpose of the proposed study is to evaluate the PYC programme for improving parenting in parents with IDDs where there is risk of child neglect. The study will include a quantitative evaluation, a process evaluation, and a qualitative evaluation of the children's and parents' perspectives on participating in PYC.
Read full original descriptionShow less
Methods: The quantitative evaluation will have a multi-centre, non-randomised, comparative study design. Eligible for participation are parents with IDDs who have children aged 0-9 years living at home and who are assessed as needing tailored parenting support. Thirty parents receiving PYC and thirty parents receiving treatment as usual (TAU) will be recruited from Swedish municipal social services. Outcome variables will be examined before and after the intervention, with a follow-up 6 months after completing the intervention. The primary outcome will be goal-attainment in parenting skills, and secondary outcomes will be parental self-efficacy and children's wellbeing. Interview methods will be used to explore the perspectives of parents and children in the PYC group.
Discussion: This study is motivated by the need for evidence-based support for parents with IDDs, and it focuses on upholding the centrality of child-caregiver relationships and family preservation, as well as children's rights and the rights of people with disabilities. Social services have expressed ethical concerns with employing a randomized design for this vulnerable group, and this study will therefore evaluate PYC in a non-randomized comparative study.
The 2 groups in the trial
- Parenting Young ChildrenTreatment being tested
Home based parenting programme for supporting parent with IDDs. 3-6 months of structured coaching sessions.
- Treatment as UsualExisting treatment, for comparison
Variety of interventions as usually provided by the social services.
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Evaluation of a Home-based Parenting Support Program - Parenting Young Children - for Parents With Intellectual and Developmental Disabilities When There is a Risk for Neglect
- Plain-language title
- Tests a home parenting program for parents with intellectual disabilitiesGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 14 August 2025