OBS'CEREVANCE: French Cohort of Pediatric Autoimmune Cytopenia
Key facts
- Where
- Amiens, Angers, Besançon, Bordeaux, Brest, Caen, Clermont-Ferrand, Paris, and Quimper, FranceSee the 9 sites
Where in France
- CHU Amiens Picardie Service d' Onco-Immuno-Hématologie PédiatriqueAmiens, FranceContact: Valérie LI THIAO TETaking people
- CHU d'Angers Unité d'Hémato-Oncologie PédiatriqueAngers, FranceContact: Isabelle PELLIERTaking people
- BESANCON CHU de Besançon Hôpital Jean MINJOZ Unité d'Hémato-Oncologie Pédiatrique, Pédiatrie 1Besançon, FranceContact: Nathalie CHEIKHTaking people
- CHU de Bordeaux - Unité d'Hématologie et d'Oncologie pédiatriqueBordeaux, FranceContact: Nathalie ALADJIDITaking people
- CHU BREST Hôpital Morvan Unité d'Onco-HématologieBrest, FranceContact: LIANA CARAUSUTaking people
- CHU de Caen Unité d'Onco-HématologieCaen, FranceContact: Marianna DEPARISTaking people
- CHU de Clermont-FerrandClermont-Ferrand, FranceContact: Eric DORETaking people
- APHP Hôpital Bicêtre Service de Pédiatrie généraleParis, FranceContact: Corinne GUITTONTaking people
- CH de Cornouaille Service de PédiatrieQuimper, FranceContact: Philippe VICTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- University Hospital, Bordeaux
- Trial code
- NCT05937828
- Record updated
- 10 July 2023
- Original description
From 2004, OBS'CEREVANCE is a national real-world prospective clinical cohort of patients with auto-immune cytopenia of pediatric-onset : Immune thrombocytopenia (ITP), Autoimmune Hemolytic anemia (AIHA), or Evans syndrome (all bi or tri cytopenias). Thanks to the collaboration of the 30 French pediatric hematologic centers, this cohort supports all of the Rare Disease Centre CEREVANCE (Centre de Référence National des Cytopénies Auto-Immunes de l'Enfant) missions for care, education and research. Specifically, this original unbiased database allows to describe the long-term health of adult patients, to identify the heterogenous genetic underlying pathophysiologic contexts, and to study the benefit-risk balance of treatments, including the growing development of targeted therapies.Read full original descriptionShow less
"French National Cohort of Patients With Pediatric-onset of Autoimmune Cytopenia (OBS'CEREVANCE Cohort)"
From 2004, OBS'CEREVANCE is a national real-world prospective clinical cohort of patients with auto-immune cytopenia of pediatric-onset : Immune thrombocytopenia (ITP), Autoimmune Hemolytic anemia (AIHA), or Evans syndrome (all bi or tri cytopenias). Thanks to the collaboration of the 30 French pediatric hematologic centers, this cohort supports all of the Rare Disease Centre CEREVANCE (Centre de Référence National des Cytopénies Auto-Immunes de l'Enfant) missions for care, education and research. Specifically, this original unbiased database allows to describe the long-term health of adult patients, to identify the heterogenous genetic underlying pathophysiologic contexts, and to study the benefit-risk balance of treatments, including the growing development of targeted therapies.
Inclusion: Diagnosis of ITP, AIHA, Evans Syndrome; Onset before the age of 18.
Exclusion: Opposition of legal representative or to data collection.