Long-term real-life database of people with chronic myeloid leukemia
Collects long-term follow-up records from people with chronic myeloid leukemia to study their care.
Plain-language title generated from the registry record
Registry title: Chronic Myeloid Leukemia (CML) Real-Life Database
Key facts
- Where
- Annecy, Caen, Clermont-Ferrand, Le Puy-en-Velay, Limoges, Marseille, Nancy, Paris, Rennes, Rochefort, Saint-Etienne, Toulouse, and Versailles, FranceSee the 14 sites
Where in France
- Ch Annecy GenevoisAnnecy, FranceTaking people
- University Hospital, CaenCaen, FranceTaking people
- CHU Clemront-FerrandClermont-Ferrand, FranceTaking people
- Centre Hospitalier Emile RouxLe Puy-en-Velay, FranceTaking people
- University Hospital, LimogesLimoges, FranceTaking people
- Institut Paoli-CalmettesMarseille, FranceTaking people
- Centre Hospital, NancyNancy, FranceTaking people
- Bicetre HospitalParis, FranceTaking people
- Hopital Paul BrousseParis, FranceTaking people
- Rennes University HospitalRennes, FranceTaking people
- Centre Hospitalier de RochefortRochefort, FranceTaking people
- Centre Hospitalier Universitaire de Saint EtienneSaint-Etienne, FranceTaking people
- University Hospital, ToulouseToulouse, FranceTaking people
- Versailles HospitalVersailles, FranceTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University Hospital, Clermont-Ferrand
- Trial code
- NCT05963061
- Record updated
- 9 April 2024
- Original description
Establish the largest possible real-life cohort collecting long-term follow-up of a maximum number of CML patients in order to carry out observational studies: epidemiological, identification of subgroups according to their response to treatment, evaluation of new molecules in real life, therapeutic discontinuations, impact of the evolution of recommendations, etc.Read full original descriptionShow less
Chronic Myeloid Leukemia (CML) Real-Life Database
Establish the largest possible real-life cohort collecting long-term follow-up of a maximum number of CML patients in order to carry out observational studies: epidemiological, identification of subgroups according to their response to treatment, evaluation of new molecules in real life, therapeutic discontinuations, impact of the evolution of recommendations, etc.
Inclusion: Patient diagnosed for chronic myelocytic leukemia.
Exclusion: CML allograft without TKI treatment; Refusal or inability to sign the consent.