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European Prospective Registry on Anomalous Aortic Origin of the Coronary Arteries

Key facts

Who runs it
University of Padova
Where
Italy and Switzerland2 sites in 2 countriesChoose a country to see its sites
Trial code
Status
Recruiting
People taking part
500 people, planned
Started
1 Jan 2019
Expected to end
1 Jan 2029
Type of study
Observational, 2 groups
Treatments tested
  • unroofing or other surgery if needed
Record updated
19 October 2023

Who can take part

Sex
Women and men
Healthy volunteers
Cannot take part

The registry criteria, word for word

Show all 2 criteriaShow less

Who can take part

  • All patients with a diagnosis of AAOCA (either referred to surgery or to medical follow-up )

Who cannot take part

  • isolated high-coronary take-off (≥ 5mm above sino-tubular junction), anomalous origin of a circumflex from the right coronary artery, anomalous course with a normal origin, and association to major congenital heart disease (i.e. Tetralogy of Fallot, transposition of the great arteries, anomalous origin of a coronary from the pulmonary artery)

This trial has no sites in United States.

It has sites in 2 countries. Choose a country to see its sites.

About the trial

What the trial wants to find out

Anomalous aortic origin of a coronary artery (AAOCA) is a group of rare congenital heart defects with various clinical presentations. The lifetime-risk of an individual living with AAOCA is unknown, and data from multicentre registries are urgently needed to adapt current recommendations and guide optimal patient management. The European Registry for AAOCA (EURO-AAOCA) aims to assess differences with regard to AAOCA management between centres.

The 2 groups in the trial

  • adult > 30 years

    All adult patient \> 30 yrs undergoing diagnosis (incidental or not) of anomalous aortic origin of coronary arteries

    Treatment: unroofing or other surgery if needed

  • Juvenile < 30 yrs

    All young patient \<30 yrs undergoing diagnosis (incidental or not) of anomalous aortic origin of coronary arteries

    Treatment: unroofing or other surgery if needed

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
EUROAAOCA Registry
Record updated
19 October 2023