Repository collecting data on epilepsy after stroke in adults
Gathers existing data from people who develop seizures after a stroke.
Plain-language title generated from the registry record
Registry title: International Post-Stroke Epilepsy Research Repository
Key facts
- Where
- New Haven, United StatesSee the site
Where in United States
- Yale UniversityNew Haven, United StatesNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Yale University
- Trial code
- NCT06108102
- Record updated
- 29 October 2025
- Original description
The International Post-Stroke Epilepsy Research Repository (IPSERR): The study aims to collate and categorize data reported by post-stroke epilepsy (PSE) researchers and lodge it within the IPSERR. Using the IPSERR database, we will conduct two individual patient data (IPD) analyses: (1) determine epilepsy, functional, and cognitive outcomes in stroke patients who develop post-stroke seizure and (2) build and validate post-stroke epilepsy prediction model and compare performance against existing models.Read full original descriptionShow less
International Post Stroke Epilepsy Research Repository to Characterize Post-stroke Epilepsy Population and Their Outcomes
The International Post-Stroke Epilepsy Research Repository (IPSERR): The study aims to collate and categorize data reported by post-stroke epilepsy (PSE) researchers and lodge it within the IPSERR. Using the IPSERR database, we will conduct two individual patient data (IPD) analyses: (1) determine epilepsy, functional, and cognitive outcomes in stroke patients who develop post-stroke seizure and (2) build and validate post-stroke epilepsy prediction model and compare performance against existing models.
Inclusion: Studies with minimum dataset of 100 patients; Studies comprising stroke patients aged ≥18 years, with ischemic or hemorrhagic stroke, presenting early or late PSS with data on patient outcome measures; Documented consent or waiver of consent following local Institutional Review Board-approved procedure; Studies published on human subjects; No restriction based on the date or language of publication, gender, or ethnicity.
Exclusion: Studies of patients with a prior history of seizures before the index stroke,; Studies that did not report outcome data, or are not able to share IPD.