Registry Follows Patients with Cardiac Amyloidosis Receiving Routine Care
Collects routine care information from people with heart amyloidosis at one hospital.
Key facts
- Who runs it
- University of Leipzig
- Where
- Leipzig, GermanySee the site
- Trial code
- Registry title
- Cardiac Amyloidosis Registry of University Hospital Leipzig
- Status
- Recruiting
- People taking part
- 500 people, planned
- Started
- 1 May 2023
- Expected to end
- May 2033
- Type of study
- Observational
- Treatments tested
- Routine diagnostics
- Routine treatment
- Record updated
- 13 November 2023
Who can take part
AI summary
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for patients with confirmed cardiac amyloidosis who are treated at University Hospital Leipzig. It collects information from routine care.
- Sex
- All sexes can join.
- Disease stage
- Cardiac amyloidosis confirmed according to current standards.
Main reasons for not taking part
- Refusal to participate
The registry criteria, word for word
Show all 2 criteriaShow less
Who can take part
- Confirmed cardiac amyloidosis according to current standards
Who cannot take part
- refusal to participate
Where in Germany
- University Hospital LeipzigLeipzig, GermanyContact: Daniel Lavall, MDTaking people
About the trial
What the trial wants to find out
This is a clinical registry of patients with cardiac amyloidosis being treated at University Hospital Leipzig. The aim of the registry is to collect detailed information about clinical events, symptoms, imaging, biomarkers, comorbidities, and treatment from routine patient management which would not be provided by randomized clinical trails.
The group in the trial
- Cardiac Amyloidosis
Patients with diagnosed cardiac amyloidosis being treated at Leipzig University Hospital.
Treatment: Routine diagnostics and Routine treatment
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorData and sources
- Registry record
- Listed on ClinicalTrials.gov.
- Official title
- Cardiac Amyloidosis Registry of University Hospital Leipzig
- Plain-language title
- Registry Follows Patients with Cardiac Amyloidosis Receiving Routine CareGenerated from the registry record. The registry title is the official one.
- AI summary
- From the trial's eligibility criteria. Read by machine on 12 November 2026.
- Record updated
- 13 November 2023