Meaningful Aspects of Health for Adults With Dementia, Their Care Partners and Healthcare Practitioners
Reason given: Submission to EC abandonned
Key facts
- Where
- Nice, FranceSee the site
Where in France
- CHU de NiceNice, FranceNo longer taking part
Trial details
- Who runs it
- Centre Hospitalier Universitaire de Nice
- Trial code
- NCT06242574
- Record updated
- 19 September 2024
- Original description
The aim of this study is to describe, using a non-interventional survey, the relevant aspects of health in adults with ADRD for the patients themselves, their carers and healthcare professionals. Commonalities and differences between these three stakeholders and according to the severity of the dementia will also be studied.Read full original descriptionShow less
A Mixed-methods Study to Identify Meaningful Aspects of Health for Adults With Dementia, Their Care Partners and Healthcare Practitioners
The aim of this study is to describe, using a non-interventional survey, the relevant aspects of health in adults with ADRD for the patients themselves, their carers and healthcare professionals. Commonalities and differences between these three stakeholders and according to the severity of the dementia will also be studied.
Adults with Alzheimer's disease and related dementia:; ADRD inclusive of the following :; Mild dementia due to Alzheimer's disease inclusive of:; Mild Cognitive Impairment (MCI),; Prodromal Alzheimer's disease,; Subjective cognitive impairment,; Early onset dementia due to Alzheimer's disease,; Mild Alzheimer's Disease; Frontotemporal dementia (FTD) - Frontal variant; Frontotemporal dementia (FTD) - Primary progressive aphasia; Lewy Body dementia (LBD); Vascular dementia; Ability to read, understand and express non opposition; Aged 50 years or older; Patient affiliated to the social security system; Care partners:; Unpaid care partners for adults with Alzheimer's disease and related dementia; ■ A care partner is the primary person who cares for an adult with ADRD, including but not limited to partner, spouse, family member, or significant other of the individual with ADRD. Care partners will be recruited where they care for patients with:; Mild dementia due to Alzheimer's disease (inclusive of Mild Cognitive Impairment (MCI), Prodromal Alzheimer's disease, Subjective cognitive impairment, Early onset dementia due to Alzheimer's disease, Mild Alzhiemer's Disease ); Moderate to severe dementia due to Alzheimer's disease; Frontotemporal dementia (FTD) - Frontal variant; Frontotemporal dementia (FTD) - Primary progressive aphasia; Lewy Body dementia (LBD); Vascular dementia; Delivers at least 10 hours of additional care per week since diagnosis; Ability to read, understand and express non opposition; Aged 18 years or older; Subject affiliated to the social security system; Health-care practitioners; Healthcare practitioners actively treating adults with ADRD, including: neurologists, geriatricians, psychiatrists, neuropsychologists and social workers; Currently treats a minimum of 10 ADRD patients; express non opposition.