Navigation Program for Adults With Liver Cancer and Their Families
Tests a navigation program guiding adults with liver cancer and families through diagnosis.
Plain-language title generated from the registry record
Registry title: Targeted Navigation in Hepatocellular Carcinoma (HCC)
Key facts
- Where
- Miami, United StatesSee the site
Where in United States
- University of MiamiMiami, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Miami
- Trial code
- NCT06260943
- Record updated
- 2 November 2026
- Original description
The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.Read full original descriptionShow less
Targeted Navigation to Achieve Health Equity: Increasing Access to Care, Patient Engagement and Research Participation
The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.
Inclusion: HCC Patients:; Enrolled or eligible for enrollment in Unified Prospective Registry and Biorepository of Patients with Chronic Liver Disease or Hepatobiliary Cancers Including Hepatocellular Carcinoma (HCC) and Cholangiocarcinoma; Diagnosis of hepatocellular carcinoma, confirmed by clinical chart review and International Classification of Diseases, Tenth Revision (ICD-10) C22.0; Adults, age 18 or older; Able to provide informed consent; All other interviewees:; Advocates who will self-identify as having had HCC; Others who self-identify as either a caregiver or support person of an HCC patient; Physicians/Licensed Independent Practitioners, Social Workers, Nurse Navigators, and Research Coordinators will all self-identify as being involved in the care of HCC patients.
Exclusion: West Haven Grade 2 or higher hepatic encephalopathy19 or other cognitive impairment; Unable to speak Spanish or English; Adults unable or unwilling to consent; Individuals who are not yet adults (infants, children, teenagers); Prisoners; Given that this study is minimal risk and there are no risks to a potential fetus, investigators will not exclude pregnant women; however, no data about pregnancy or their fetus is being collected.