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Studies a physical activity recovery stay for children with cerebral palsy or cancer

Looks at a fitness stay for children with cerebral palsy or cancer.

Key facts

Who runs it
Union de Gestion des Etablissements des Caisses d'Assurance Maladie - Nord Est
Where
Nancy, FranceSee the site
Trial code
Registry title
Evaluation of the Effect of a Physical Activity Recovery Stay
Status
Recruiting
People taking part
50 people, planned
Started
22 Mar 2022
Planned end
Sept 2026
Type of study
Observational
Record updated
8 May 2026

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for children aged 8 to 18 with a chronic disease, rare disease or disability who are out of shape from lack of exercise and are staying at the CMPRE to restart physical activity.

Age
8 to 18 years
Sex
All sexes
Disease stage
A chronic disease, rare disease or disability with physical deconditioning (loss of fitness from lack of exercise).
Earlier treatment
Must be taken in charge at the CMPRE for a stay to resume physical activity. Must not be in rehabilitation during the stay.

Main reasons for not taking part

  • Under 8 or over 18 years old
  • In rehabilitation during the stay
  • Significant change in their therapeutic management during the stay
  • Significant cognitive impairment that prevents understanding instructions
  • Significant club or leisure sports activity (3x/week)

The registry criteria, word for word

Show all 10 criteriaShow less

Who can take part

  • Children with a pathology (chronic disease, rare disease or disability) in a state of deconditioning to exercise
  • Taken in charge at the CMPRE for a stay to resume physical activity

Who cannot take part

  • Significant cognitive impairment preventing comprehension of instructions
  • Age under 8 and over 18
  • Patients undergoing rehabilitation during the stay
  • Patients with a significant change in their therapeutic management during the stay
  • Significant club or leisure sports activity (3x/week)
  • Electric wheelchair
  • Non-compliance with stay (5 ½ days missed out of total stay)
  • Participation in another study during the return-to-physical-activity stay

Check if you might fit

Answer for yourself. This is not a decision: only the study team can say whether you can take part.

  • Are you between 8 and 18 years old?

Where in France

  • Institut Régional de Médecine Physique et de RéadaptationNancy, FranceContact: Jonathan Pierret, PhDTaking people

About the trial

What the trial wants to find out

A WHO study in 2020 revealed that 81% of adolescents (aged 11-17) do not respect the recommendation of one hour of moderate physical activity per day. In the context of disability, many factors impose limits on physical activity. While the pathology itself induces limitations and restrictions (prolonged sitting time, assisted movement, etc.), organizational constraints also apply to both children and parents, who have to divide their time between work, school and therapeutic care, which is sometimes numerous and varied over the course of a single week. These limitations generate stress and fatigue, and prolonged sedentary periods lead children with chronic illnesses, rare diseases or disabilities into a process of physical deconditioning. The accumulation of sedentary time is detrimental to cardiovascular and metabolic health.

Read full original descriptionShow less

To combat this deconditioning, the 2008 National Physical Activity and Sport Plan (PNAPS) sets out the main guidelines for treatment and implementation. The plan explains that "for patients with chronic illnesses, rare diseases or disabilities, the aim is to encourage care and guidance towards Adapted Physical Activity (APA). The attending physician will be able to identify local therapeutic education programs, rehabilitation services and "sport-santé" offers, to improve access for these patients to supervised local programs". In addition, the plan suggests "developing APA programs in healthcare establishments to enable people with chronic illnesses, rare diseases or disabilities to access health education incorporating practical sessions".

In line with this plan, an exercise reconditioning program has been set up at our facility. This three-month stay includes children with a variety of pathologies, but with a common feature of physical deconditioning.

The group in the trial

  • Deconditioning to physical exertion

    The children taking part in the return-to-physical-activity program are referred to the Flavigny-sur-Moselle CMPRE for medical consultation due to a state of deconditioning to physical exertion concomitant with a pathological situation. The pathology most frequently encountered during this stay is cerebral palsy. However, the Flavigny CMPRE is accredited in a number of fields (orthopedics, burns, neurology, oncology), and the pathologies of the children referred to this stay are representative of these. These include children with scoliosis, obesity, Guillain-Barré syndrome, cystic fibrosis, Charcot's disease and cancer.

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

Print a page for my doctor

Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Evaluation of the Effect of a Physical Activity Recovery Stay on the Physical Condition and Quality of Life of Children in a Situation of Physical Deconditioning
Plain-language title
Studies a physical activity recovery stay for children with cerebral palsy or cancerGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 12 November 2026.
Fit questions
Built from NCT06320496, who can take part
Record updated
8 May 2026