Studies how older women and primary care staff experience osteoporosis care
Interviews older women and healthcare staff about diagnosing and managing osteoporosis, a bone-weakening disease.
Plain-language title generated from the registry record
Registry title: Primary Care Management of Osteoporosis in Older Women
Key facts
- Where
- Bradford, United KingdomSee the site
Where in United Kingdom
- Bradford Institute for Health ResearchBradford, United KingdomTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Bradford Institute for Health Research
- Trial code
- NCT06431867
- Record updated
- 4 February 2025
- Original description
The Investigators aim to improve primary-care for older women with osteoporosis.Read full original descriptionShow less
A Qualitative Exploration of Older Women and Primary Healthcare Professional Experiences to Guide Improvements in Osteoporosis Care
The Investigators aim to improve primary-care for older women with osteoporosis.
Older women they spoke with previously felt unseen, unimportant, unheard and uninformed. These women felt that bone/joint health was an important issue for women aged 70+. Osteoporosis is a disease that makes bones more breakable and can lead to significant pain, disability and death, costing approximately £4.4 billion a year in the United Kingdom.
Women are four times more likely to have osteoporosis than men and suffer fractures earlier. Osteoporosis care is poor in primary care even though good guidelines are available.
The Investigators will work with older women and healthcare professionals to help guide the research. They have already looked at published research and will build on this. They will identify what is important for both older women and professionals to inform the first interview questions. The Investigators will ask older women and healthcare professionals about the diagnosis and treatment of osteoporosis. They will also ask them how they manage osteoporosis as a patient or care provider.
At regular intervals, the Investigators will look at the interview findings first and then share their thoughts with older women and professionals. Together they will explore what the interviews mean. These discussions may change the questions asked and who is interviewed next.
The Investigators will combine all the information from interviews to identify what works well and less well in osteoporosis care. They will check these findings against the guidelines. They will continue to work with older women and healthcare professionals to develop recommendations for improving care. The Investigators will also identify areas of further work.
They will share recommendations with healthcare commissioners and produce a summary for a variety of professional networks. They will also publish papers in journals aimed at healthcare professionals and produce a summary document and advice for older women to use.
Inclusion: Older women:; Osteoporosis diagnosis - either self-reported following a clinical diagnosis or taken from the patient's medical record in the case of the Community Ageing Research 75+ (CARE75+) cohort and Fracture Liaison Service (FLS) patients; Aged 70 years or older to align with the recommendation from our preliminary engagement work; Community dwelling; Healthcare professionals:; Working in the National Health Service (NHS) in England to align with the participant sample.
Exclusion: Aged under 70 years; Older women:; Lacks capacity to consent to participate in research; Resident in a care home - care home residents are likely to need different types of interventions than community dwelling older women as there are organisational considerations; Member of the co-production workshop; Healthcare professionals:; Not performing any NHS work; < 12 months in NHS practice.