Studies autistic adults who are parents and how a parenting program might suit them

Trial details

Who runs it

Universitätsklinikum Hamburg-Eppendorf

Trial code

NCT06502054

Record updated

11 March 2025

Original description

In many individuals, Autism Spectrum Disorder (ASD) is recognized and diagnosed late in adolescence or even in adulthood, despite the presence of long-standing impairments and distress. One area that has received little attention so far is research and interventions in clinical practice that relate to the experienced realities of parenthood for autistic adults or offer support in this context. The few existing research findings in this field suggest that parents with ASD might face specific challenges. At the same time, there is a lack of empirical research on the experiences autistic adults have with parenthood, whether they perceive a need for specific support services, and, if so, what those services should look like. To fill this research gap, this study aims to examine the mental health, needs, and strengths of parents with ASD. Particular focus will be given to parental stress and difficulties in the areas of mentalization and emotion regulation, which can increase the risk of psychological comorbidities. Using a mixed-methods approach, the study will investigate to what extent an already established parenting program or an adaptation thereof might be suitable to address the specific requirements of autistic parents and enhance their parenting skills.Read full original descriptionShow less

Being a Parent with an Autism Spectrum Disorder: Strengths, Challenges and Adaptation of a Mentalization-based Parenting Program

In many individuals, Autism Spectrum Disorder (ASD) is recognized and diagnosed late in adolescence or even in adulthood, despite the presence of long-standing impairments and distress. One area that has received little attention so far is research and interventions in clinical practice that relate to the experienced realities of parenthood for autistic adults or offer support in this context. The few existing research findings in this field suggest that parents with ASD might face specific challenges. At the same time, there is a lack of empirical research on the experiences autistic adults have with parenthood, whether they perceive a need for specific support services, and, if so, what those services should look like. To fill this research gap, this study aims to examine the mental health, needs, and strengths of parents with ASD. Particular focus will be given to parental stress and difficulties in the areas of mentalization and emotion regulation, which can increase the risk of psychological comorbidities. Using a mixed-methods approach, the study will investigate to what extent an already established parenting program or an adaptation thereof might be suitable to address the specific requirements of autistic parents and enhance their parenting skills.

Inclusion: Parents who fulfill the main diagnosis of ASD, including atypical autism (ICD-10: F84.1) and Asperger syndrome (ICD-10: F84.5); Age ≥ 18 years; Have a child aged 0 to 6 years; Parents without a lifetime main diagnosis of a psychiatric illness (ICD-10-GM-2016: F10 - F69); Age ≥ 18 years; Have a child aged 0 to 6 years; Matched to the study group in terms of age and gender.

Exclusion: Severe visual or hearing impairment (uncorrected); Serious neurological and psychiatric illnesses (e.g., epilepsy, psychoses); Above-mentioned psychiatric diagnoses; Severe impairment of vision or hearing (not corrected); Below-average general cognitive ability (according to clinical impression); Lack of German language skills; Acute suicidal tendencies (according to clinical findings); Eligibility Criteria for the Control Group; Below-average general cognitive ability; Lack of German language skills.

In- and exclusion criteria for the study population:.

ClinicalTrials.gov NCT06502054