Adapts a fatigue management program for adults with sickle cell disease
Tests an adapted fatigue program in adults with sickle cell disease and tiredness.
Plain-language title generated from the registry record
Registry title: Adapting the FACETS Program to Sickle Cell Disease
Key facts
- Where
- Grenoble and Le Chesnay, FranceSee the 2 sites
Where in France
- CHU Grenoble AlpesGrenoble, FranceTaking people
- Hospital VersaillesLe Chesnay, FranceNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Versailles Hospital
- Trial code
- NCT06650813
- Record updated
- 19 August 2025
- Original description
Adaptation of a fatigue management program combining the principles of cognitive-behavioral therapy and energy conservation strategies (FACETS program) for a population of adult patients with sickle cell disease (Drépa-FACETS program).Read full original descriptionShow less
Adapting the FACETS Fatigue Management Program to Sickle Cell Disease
Adaptation of a fatigue management program combining the principles of cognitive-behavioral therapy and energy conservation strategies (FACETS program) for a population of adult patients with sickle cell disease (Drépa-FACETS program).
Inclusion: Participant having freely given his oral agreement; Participant with a major sickle cell syndrome, regardless of genotype (e.g. SS, SC, Sbeta); Participant with a sufficient command of spoken and written French to take the assessments, complete the questionnaires, follow the program sessions and carry out the home exercises.
Exclusion: Participant with one or more severe psychiatric pathologies (e.g. severe depression, psychosis) that could interfere with the conduct of the study, in particular the primary and secondary endpoints; Participants with another chronic pathology causing fatigue; Participants in vaso-occlusive crisis (VOC) or hospitalization; Participant under legal protection (guardianship, curatorship, safeguard of justice, deprived of liberty).