Transition From Pediatric to Adult Epilepsy Care
Key facts
- Where
- Pavia, ItalySee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 17 and 18 years old?
Source: NCT06778772, who can take part
Where in Italy
- Child NeuropsichiatryPavia, ItalyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- IRCCS National Neurological Institute "C. Mondino" Foundation
- Trial code
- NCT06778772
- Record updated
- 16 January 2025
- Original description
The goal of this observational study is to assess the preparation of the caregiver and the patient for the transition, by comparing the results of the Transition Readiness Assessment (TRAQ) questionnaire at the time of the last pediatric neuropsychiatric visit, which is then repeated at the first adult epilepsy neurology visit.Read full original descriptionShow less
Transition to Adult Care in Epilepsy
The goal of this observational study is to assess the preparation of the caregiver and the patient for the transition, by comparing the results of the Transition Readiness Assessment (TRAQ) questionnaire at the time of the last pediatric neuropsychiatric visit, which is then repeated at the first adult epilepsy neurology visit.
The assessments will be conducted at the last evaluation at the pediatric epilepsy service and repeated at the first visit to the adult epilepsy service.
**Inclusion Criteria:**; Patients aged 17 or 18 years; Diagnosed with focal or generalized epilepsy, regardless of etiology and neuropsychological, neuropsychiatric, or internal comorbidities; Those for whom continued epileptology follow-up is required according to standard care guidelines; **Exclusion Criteria:**; Patients undergoing EEG only for the detection of EEG abnormalities without a diagnosis of epilepsy; Patients for whom the last neuropsychiatric evaluation does not recommend continued epileptology follow-up (patients considered "cured" from epilepsy according to ILAE guidelines).