Registry collecting information on people with blood clotting and bleeding disorders
Collects health information from people with hemophilia, thrombosis, sickle cell disease, or Glanzmann thrombasthenia.
Plain-language title generated from the registry record
Registry title: ATHNdataset Registry
Key facts
- Where
- Hickory, United StatesSee the site
Where in United States
- American Thrombosis and Hemostasis NetworkHickory, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- American Thrombosis and Hemostasis Network
- Trial code
- NCT06820515
- Record updated
- 21 April 2026
- Original description
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems.Read full original descriptionShow less
American Thrombosis and Hemostasis Network ATHNdataset Registry
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems.
Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.
Inclusion: Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate; Participants of any age; Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent.
Exclusion: Any participant unable to provide consent or assent to participate in the ATHNdataset.