Studying Shortness of Breath in People With Myasthenia Gravis
Looks at why people with myasthenia gravis feel short of breath.
Plain-language title generated from the registry record
Registry title: Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Key facts
- Where
- Paris, FranceSee the site
Where in France
- Institute of MyologyParis, FranceTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Institut de Myologie, France
- Trial code
- NCT06866652
- Record updated
- 8 May 2026
- Original description
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.Read full original descriptionShow less
Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
Inclusion: Age ≥18; Confirmed diagnosis of autoimmune MG; Shortness of breath in daily life: score 1 or 2 on the respiration item on the MG- activities of daily living score; Signed consent form; Affiliated to or beneficiary of a social security scheme.
Exclusion: Current MG crisis or exacerbation (necessitating increase in MG medication \&/or hospital admission); Known respiratory disorder (other than MG); Recent (within past 4 weeks) respiratory infection; Severe cognitive impairment/guardianship; Known Pregnancy; No dyspnea - score 0 or 3 on the respiration item on the MG- activities of daily living score.