Observational study of people living with systemic amyloidosis
Studies adults with systemic amyloidosis, a disease where abnormal protein builds up in organs.
Plain-language title generated from the registry record
Registry title: Observational Epidemiological Study of Patients Suffering From Systemic Amyloidosis
Key facts
- Where
- Bologna, ItalySee the site
Could this be for you?
Answer for yourself. This is not a decision: only the study team can say whether you can take part.
- Are you between 18 and 99 years old?
Source: NCT06866912, who can take part
Where in Italy
- IRCCS Azienda Ospedaliero-Universitaria di BolognaBologna, ItalyTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- IRCCS Azienda Ospedaliero-Universitaria di Bologna
- Trial code
- NCT06866912
- Record updated
- 10 March 2025
- Original description
observational epidemiological study of patients affected by systemic amyloidosisRead full original descriptionShow less
Observational Epidemiological Study of Patients Suffering From Systemic Amyloidosis
observational epidemiological study of patients affected by systemic amyloidosis
Inclusion: patients diagnosed with amyloidosis or asymptomatic carriers of mutations in the transthyretin gene; minimum age of 18 years at the time of diagnosis; obtaining informed consent.
Exclusion: nothing.