Patient Views on Genetic Testing for Leiomyosarcoma
Studies patient beliefs and attitudes about genetic testing in people with leiomyosarcoma.
Plain-language title generated from the registry record
Registry title: Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients
Key facts
- Where
- Salt Lake City, United StatesSee the site
Where in United States
- Huntsman Cancer Institute at the University of UtahSalt Lake City, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- University of Utah
- Trial code
- NCT06875700
- Record updated
- 13 June 2025
- Original description
Genomic research has shown that a portion of leiomyosarcomas can be attributed to an underlying cancer predisposition syndrome. However, the optimal approach for incorporating germline testing into the care of these patients. This study is assessing the beliefs about the heritability of leiomyosarcoma and other cancer risks, and attitudes towards germline testing among leiomyosarcoma patients.Read full original descriptionShow less
Beliefs, Attitudes, and Response to Genetic Testing in Sarcoma Patients
Genomic research has shown that a portion of leiomyosarcomas can be attributed to an underlying cancer predisposition syndrome. However, the optimal approach for incorporating germline testing into the care of these patients. This study is assessing the beliefs about the heritability of leiomyosarcoma and other cancer risks, and attitudes towards germline testing among leiomyosarcoma patients.
Inclusion LMS Proband; Actionable germline PV detected in the research context; Living; No prior germline testing for this PV; Able to speak and read English; Mentally competent; Age 18 or older; Relative of LMS Proband; 25-50% chance for having inherited the PV; No prior germline testing for this PV; Able to speak and read English; Mentally competent; Age 18 or older; Exclusion (both cohorts); <18 years; Unable to read or write.